LuciaDisturbed
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- May 28, 2006
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I've been trying for the past few months to see a neurologist and a rheumologist, but NO ONE will shell out the cash for an interpreter, even though they are aware of the liability if they don't hire one. I warned them that it is a violation of the ADA laws, they tell me they don't give a flying fuck about that and that they don't want to hire an interpreter, and they won't even see me and let me write back and forth...they just can't be bothered to deal with deaf patients! I am so frustrated and I do not know what to do anymore. I seriously need a wheelchair, and I seriously need to find out what the hell is wrong with me, but no one wants to do tests and treat me. I have a harder time getting around some days, and other days I am ok. I have good days and bad days, but on the bad days and on days where there is a lot of walking involved (such as Six Flags and Sea World and Schlitterbahn Park) I seriously need a wheelchair. I can barely walk more than a block now. It hurts to walk a lot of the time, and sometimes my legs below my knees goes numb completely. My issues are really getting in the way of my quality of life and only if I had a wheelchair it wouldn't be such an issue. I never had this refusal to hire interpreters issue in Minnesota, in fact ALL the doctors and ALL the clinics in Minnesota are so scared of the liability issue that they totally insist on hiring an interpreter no matter what. But down here in Texas they don't care about liability. They just can't be bothered. They don't care. I feel like no one cares. I seriously need to know what is happening to me and why and they won't do anything. I can't get a lawyer cause I don't have the money, I am on a fixed income, so I am stuck. I can't do anything about it anymore. Because of this, I am at home most of the time stuck at the computer or watching movies all day long because I can't really do anything else outside of the home, I can't go out and have fun most of the time, the only times I ever leave my apartment is to go to the doctors or to go to deaf bowling with my fiance where all I do is sit and chat with the other deafies who do not bowl but come just to socialize. I can't even bowl more than one game, if I do bowl more than one game my hips get really pissy with me, and so does my back. I have 2 injured discs in my lower back as well as peripheral neuropathy and fibromyalgia, but I think there is something worse going on with me given the symptoms I am having right now. I don't know what to do anymore and I am so frustrated and tired and pissed and sad. My fiance is worried about me. I don't know what to do. My body is waging a war on itself, and I will lose the war if no one will help me. I try to fight, but no one will help. I can't win if no one will help me. Do any one know what to do? I need some some advice and some suggestions. And no, I'm not moving out of Texas, that is completely out of the question. I can't threaten legal action because NO ONE cares about liability, they don't even care if I try to sue. They just don't give a flying fuck. I really, really, really want my hip and my back fixed so I can have a normal life again. I can't even work. I'm on SSI/SS for a really long time. I can't depend on SSI/SS forever, I don't think it will last long, given the terrible economy nowadays. If I at least had a wheelchair, my quality of life might be better. Right now I kind of feel like an invalid, and I don't like that. I would like to go out and do fun stuff all the time, go downtown on the bus, visit the riverwalk and go to the mall and go to the art museum across town. A wheelchair would allow me to do all those things (all the buses here are accessible and have ramps and spaces for wheelchair users. I would like to go to Walmart and not have to use their awful motor carts. They suck, they are VERY SLOW (slower than a person walking!), and sometimes they make a clunk clunk clunk noise all the time that is EXTREMELY ANNOYING. My fiance even says the motor cart is VERY LOUD when it runs. I don't have a disabled parking placard because I don't have a car of my own, so my fiance has to drop me off at the front doors of Walmart or any other store, and then he has to go and search for a regular parking spot. It's pretty difficult for me. I'm tired and sick of all this. I wish someone would help me make the stupid doctors hire interpreters for me and see me and give me what I need (wheelchair, surgeries, etc). I'm just pretty frustrated right now.
Do anyone have any suggestions, ideas, whatever? Moving out of Texas is OUT OF THE QUESTION. I just want to get the damn doctors to hire interpreters and to be willing to see me. They don't want to see me at all because I'm deaf and they can't be bothered to hire interpreters or even to use paper and pen (I'm more than willing to write back and forth if necessary, it's not too much of a problem for me cause I have good English skills, but I really prefer to have an interpreter because that way I can tell the doctor EVERYTHING and it would save a lot of time, writing back and forth takes up a lot of time and I can't do it for hours. the doctors have limited times with each patient. Having an interpreter would be so much quicker and easier. It would ease a lot of communication issues for both me and for the doctors.)
Thank you in advance. Sorry if this post sounds whiny, but I am just really frustrated at this point and would really like some good advice and suggestions.
Do anyone have any suggestions, ideas, whatever? Moving out of Texas is OUT OF THE QUESTION. I just want to get the damn doctors to hire interpreters and to be willing to see me. They don't want to see me at all because I'm deaf and they can't be bothered to hire interpreters or even to use paper and pen (I'm more than willing to write back and forth if necessary, it's not too much of a problem for me cause I have good English skills, but I really prefer to have an interpreter because that way I can tell the doctor EVERYTHING and it would save a lot of time, writing back and forth takes up a lot of time and I can't do it for hours. the doctors have limited times with each patient. Having an interpreter would be so much quicker and easier. It would ease a lot of communication issues for both me and for the doctors.)
Thank you in advance. Sorry if this post sounds whiny, but I am just really frustrated at this point and would really like some good advice and suggestions.