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Greif86

Greif86

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Hello, my name is Robyn. I am a happily married stay at home mom of three children. Aidan (3), Addisyn (16mo), and Avery (2mo). A deafness gene runs on my side of the family, affecting only females: I am the only partial deaf (completely on my R, 75% loss in my L), and my oldest daughter Addisyn is the only complete hearing female in many, many generations. My 2 month old daughter, Avery has been confirmed that she is deaf. She's failed all of her tests since birth, and we have gone through numerous Audiologist appointments because ENT's don't like diagnosing an infant deaf. Finally, after 20 tests with the same result, we are moving on and doing an ABR on 4/25. She does not respond to noise, sound, or voice..only reacts to vibrations..she could not handle her bouncer seat that vibrates because it was a sensory overload for her. We have started teaching our older children ASL, as well as ourselves, and I was told to start with simple signs with Avery..for now I sign milk each time I nurse her. I'm here looking for some support, and advice on parenting a deaf child, as well as learning/teaching ASL..I am very excited that I found alldeaf. Thanks for reading~sorry this was so long!
 
:welcome: to AD!

U mean only the females are deaf? All the males are hearing? That is so interesting!
 
Welcome to AllDeaf! ;)

Please don't be sorry for the long post. There are posts around here that are much longer than yours, ha. You will find a lot of interesting stuffs as you surf around on this site. Please feel free to post anything that comes on your mind and if you have any questions, don't hesitate to ask away. :)

Again, Welcome Aboard!
 
Hello and :welcome: to AD! You will find helpful posts on any topic on the site. Enjoy your way around. :)
 
shel90 said:
:welcome: to AD!

U mean only the females are deaf? All the males are hearing? That is so interesting!
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Yes, only females are affected by deafness. The males: my brothers, uncles, cousins, son, ect. have perfect hearing. We have no idea how/why this is. Until my oldest daughter Addisyn, every female was deaf. That was a BIG shocker. and then our youngest daughter Avery was born, we thought that we might have "beat" the gene since Addisyn is 100% hearing; but that is not the case. No worries though, I come from a family where deafness is the norm and hearing people are odd:giggle:I just have not practiced ASL in a very long time, so I am in the process of re-learning, and teaching my husband and 2 children, as well as trying to start with Avery (she is 10 weeks old).
 
Greif86 said:
Yes, only females are affected by deafness. The males: my brothers, uncles, cousins, son, ect. have perfect hearing. We have no idea how/why this is. Until my oldest daughter Addisyn, every female was deaf. That was a BIG shocker. and then our youngest daughter Avery was born, we thought that we might have "beat" the gene since Addisyn is 100% hearing; but that is not the case. No worries though, I come from a family where deafness is the norm and hearing people are odd:giggle:I just have not practiced ASL in a very long time, so I am in the process of re-learning, and teaching my husband and 2 children, as well as trying to start with Avery (she is 10 weeks old).
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In my family, only my brother and I are deaf due to unknown reasons.

In my best friends' family, her oldest brother is hearing, the 2nd brother is deaf, the 3rd brother is hearing and then her, being the youngest, is deaf.

These kinds of things always fascinated me. :)
 
:welcome: to AllDeaf Forum.

It is very interesting about your females side of the family are deaf and males are hearing.

I hope ya enjoy reading and posting. :)
 
welcome from one new member to another. I hope to have many rewarding conversations with you!
 
Welcome, Robyn. I hope you enjoy AllDeaf and post more about your family's deafness with a female twist.
 
Nice to meet ya Robin, enjoy your time... Lookin forward to hearing about your family and this female gene thing. fascinating... Have a great day. :)

One thing that you can spend for free is your smile.. so here is one for you.:cool2:
 
Hi, Robyn!
I would suggest that you contact your state's School for the Deaf. They can often provide really good resources! I know of another family where all the females are dhh.
 
:welcome: to AllDeaf forum,Greif86. It cannot be a hereditary for only females to be Deaf. That is very strange to have only males who remain hearing in your family. Well, anyway I hope you enjoy reading and posting all the threads here. Just have fun with us. See you around. :wave:
 
Greif86 said:
We have started teaching our older children ASL, as well as ourselves, and I was told to start with simple signs with Avery..for now I sign milk each time I nurse her. I'm here looking for some support, and advice on parenting a deaf child, as well as learning/teaching ASL..I am very excited that I found alldeaf. Thanks for reading~sorry this was so long!
Click to expand...

Hi, Robyn -

BTW, I wanted to add to this, I'm also a mother of 2 deaf sons (7 and 8 years old). It is never too late to start re-learning and also showing the signs to Avery. The earlier the better it is. The more exposure she gets from ASL, the better off she is being able to express her frustrations easily without any struggles. Also, it helps her self esteem as she gets older. ;)
 
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