Need your opinions ci user

Frisky Feline

Frisky Feline

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Hi,

some of you know already that my hub has been having bad tinnitus, dizziness and veritgo and OFF BALANCE especially. Before He recevied CI, his balance was not that bad, very little. After he got a CI, and his balance got worse and worse each year. His dizziness is on and off. BUT the MOST part that has been bothering my hubby is, Tinnitus and off balance when he got CI and they both are worse. He asked me for my opinion, what if he removes his CI, will his balance returns to the orginial ones or will go WORSE one. Tinnitus may go worse but he cant stand the feeling when the balance is horrible. I was choked when he asked me if i think will it help if he removes his CI.. i said to him, " i thought you like CI?" He said, " I dont care i cant stand the off balance rather than listening to CI." i feel helpless not able to help him.

Anyone of you who had experiences with off balance after you guys got CI??

p.s. He did ask doctor but you all already know that most doctors WONT admit if there goes wrong.
 
Oh thats too bad. :( I dont know what is up to my hubby's decision to remove his CI or not.. More likely next year or two if it gets worse for him.
 
Frisky Feline said:
Oh thats too bad. :( I dont know what is up to my hubby's decision to remove his CI or not.. More likely next year or two if it gets worse for him.
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You know I don't have a CI, but I have bad cranial nerve damage that causes balance issues.

Whether he wears the CI or not, it isn't going to affect his balance, unless it is purely psychosomatic.

If he has nerve damage from surgery, it isn't going to improve from no CI>
 
Bottesini said:
You know I don't have a CI, but I have bad cranial nerve damage that causes balance issues.

Whether he wears the CI or not, it isn't going to affect his balance, unless it is purely psychosomatic.

If he has nerve damage from surgery, it isn't going to improve from no CI>
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He does have bad balance before. Once he got a CI and he lost his balance on his first day, and the next few days. i saw the whole of his behavior so different. :( wish he never got a CI in the first place. It does bother him a lot.
 
Frisky Feline said:
He does have bad balance before. Once he got a CI and he lost his balance on his first day, and the next few days. i saw the whole of his behavior so different. :( wish he never got a CI in the first place. It does bother him a lot.
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I agree with Bott. He probably had temporary increased imbalance after surgery due to fluid build up/swelling, but it was temporary. CI or no CI, it isn't going to cause or stop his dizziness. He may as well enjoy it. His doctor was being forthright. Another doctor will tell you the same thing and has nothing to lose by doing otherwise. I know Meniere's sufferers. They know their CI is not to blame for flare ups in vertigo.
 
Bottesini said:
You know I don't have a CI, but I have bad cranial nerve damage that causes balance issues.

Whether he wears the CI or not, it isn't going to affect his balance, unless it is purely psychosomatic.

If he has nerve damage from surgery, it isn't going to improve from no CI>
Click to expand...

I really doubt the dizziness is from psychosomatic. You do not know that , you're not a doctor. Every person is difference and I feel the guy should see another doctor to get a second opinion .
 
whatdidyousay! said:
I really doubt the dizziness is from psychosomatic. You do not know that , you're not a doctor. Every person is difference and I feel the guy should see another doctor to get a second opinion .
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Botts was giving a suggestion, not a diagnosis.
 
My hub had a CI in 2005 and it's getting worse with his balance. I can see how bad he walks like he's drunk slightly but he is a sober . His balance worries me. His tinnitus got worse right after he got CI .


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He has been seeing two different doctors. Nothing about it and saw the doctor who performed him. He didn't know and said. It should reduce the tunnius. NOT.


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whatdidyousay! said:
I really doubt the dizziness is from psychosomatic. You do not know that , you're not a doctor. Every person is difference and I feel the guy should see another doctor to get a second opinion .
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Hmmph....
You are always telling people they can't read. OH, you should maybe look in a mirror.

Ducky gets upset if I call people an idiot, so I will just say, what I said was, I don't think his balance will get better if he doesn't wear the CI.

I think he has nerve damage...


So IF it got better with no CI, then I would wonder about psychosomatic balance problems.
 
Frisky Feline said:
My hub had a CI in 2005 and it's getting worse with his balance. I can see how bad he walks like he's drunk slightly but he is a sober . His balance worries me. His tinnitus got worse right after he got CI .


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Tinnitus getting worse immediately after surgery is very normal. Mine certainly did. It calmed back down after a couple of weeks. For those who have persistent tinnitus, they all report noticing it only when not wearing the processor. Tinnitus worsens with nerve cell damage, which is why normal hearing people get ringing in their ears following exposure to loud noise.

If he's already gotten a second opinion, I would move on from the idea of the CI being the cause of his vertigo or that removing it would solve it.

You will get more feedback from people who suffer similar symptoms as your husband if you look in Facebook for CI groups.
 
I don't know. You say he was implanted in 2005? It's been almost 10 years. Personally I would think if the CI was going to mess with his balance it would have been evident from the get go. I'm no doctor but I wouldn't blame the CI for something that has gotten progressively worse for the past 10 years. I suppose it could, but my guess is he has something else going on in his ventricles. Has he talked to a doctor about this at all in the past 9 years?
 
Right after he got CI and didn't feel right. He tried to tell the surgeon who did his CI and he tried to tell the doctor. All they tell him to wait and it will go away. It didn't go away fir 9. He did see doctor each year and he stopped seeing doctor three yrs ago. He wonders if it's CI to remove it off. Will he feel better? Like botti mentioned that's possible, I really wish he didn't get a CI in the first place. He feels the same thing. I'll keep eyes on him if things get worse. We ll talk again oh boy


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He wasn't planning to get CI but they told him if he gets CI. Tunnius will reduce. That's why he went for it. Wrong, tinnitus got worse after he got a CI. That's how it started


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Frisky, I use a CI (AB) and have no complications from it. Like everyone has mentioned, it can be a pre-existing condition that has gradually turned worse. If your hubs is reluctant to see a doctor, just know that self diagnosing a condition is not always an efficient way to find out what is wrong. Only an ENT specialist can tell you for sure. One thing to remember is whether your hubs already had balance issues before receiving a CI, and if so, did both sides understand any potential complications whether it is associated with the CI or totally due to separate factors? Hope that helps... :hug:
 
Bottesini said:
Hmmph....
You are always telling people they can't read. OH, you should maybe look in a mirror.

Ducky gets upset if I call people an idiot, so I will just say, what I said was, I don't think his balance will get better if he doesn't wear the CI.

I think he has nerve damage...


So IF it got better with no CI, then I would wonder about psychosomatic balance problems.
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eh.

For once I think you are right Botts so be my guest.

Botts never said she was a doctor or knows everything. As LoveBlues said.. she was just stating a suggestion or opinion.

Sounds to me like he HAS seen several doctors over the years (1st and 2nd opinion) and I think that the power of suggestion COULD be a factor. Worrying about something that exists could amplify it.

Or it could be nerve damage.
Or something else entirely. though after 9 years I'd have hoped a doctor would have taken more notice :(. Might be time to try again to get some answers before deciding whether to get rid of the CI. Getting rid of it may bring a whole other set of problems too.
 
Maybe CI has nothing to do with it. I know doctor don't know much about tinnitus and balance. The doctor thought that CI will help to clear up either But both didn't .

Thank you everyone. It helps to see everyone who experiences CI.


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BleedingPurist said:
Tinnitus getting worse immediately after surgery is very normal. Mine FF. Yes he had balance issue. It was not that bad compare to when he had a



If he's already gotten a second opinion, I would move on from the idea of the CI being the cause of his vertigo or that removing it would solve it.



You will get more feedback from people who suffer similar symptoms as your husband if you look in Facebook for CI groups.
Click to expand...


Which better is CI group? I'd like to join. Thanks


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