My 1 yr old daughter....

nirenameit

nirenameit

New Member
Joined
Nov 14, 2006
Messages
39
Reaction score
0
Hi, I joined this site in hopes of finding out more information about the deaf culture and things i can do to help my daughter. She just turned one year old last month. She was born with a lot of issues and we just learned that shes almost deaf. She got her first pair of hearing aides a few weeks ago. She hates them and tries to pull them off all the time. Shes going in December to see if shes a canidate for Choclear Implants (forgive me if i spelled that wrong) I hope that i can meet alot of people on here that can help me out and give me advice because i sure can use it. I learned ASL in high school but that was a while ago, so i need to refresh my memory.
 
welcome!!

my son has a cochlear implant. he got at 16 months due to a progressive hearing loss. He had hearing aides at 6 weeks. Your daughter will benefit so much fromt the implant. I know my son has.He just turned 2 in October.You will find alot of parents here with kids with implants and alot of negativity towards implants on kids but you as the parent make the decision for your daughter.go to www.cochlear .com ,my son has the freedom and it gives you tones of info.and google in cochlear implants and it will also give you info! Good Luck and Welcome.
 
Thanks

Thank you. Im very new at the whole hearing aides and choclear implant thing. Its kind of scary thinking about surgery on such a small child, but i feel that if its best for her then i have to do it. We will know the end of december if she is going to get implants. I cant wait to hear her talk!
 
your welcome

its the best when our son said mommy and daddy and even byebye I cried and now he babbbles and talks his new thing is "whats that?" Its a miracle not a cure.. It is scary as a mother for the surgery, I was a mess. but well worth it now.he wears a hearing aide on the other ear. Just to let you know my son knows no sign language we are teaching him oral theropy first. and maybe some sign later.he hears at 20dbd which is normal hearing.Well he does know the sign for eat but thats all.where do you live? I am in Ohio.
 
Hello and learns Here All deaf and hopefully its helpful for you and your girl


Good luck :):):)
 
and alot of negativity towards implants on kids
Click to expand...
I don't know.........I think attitudes towards implants in kids have improved immensley! I really think within five or ten years, that implants will be pretty much accepted, just as hearing aids are.
nirenameit, Welcome! Are you hooked up with the American Society for Deaf Children yet? They are probaly the best organization for hearing families who want to learn more about Deaf culture, and who are OK with Sign.
Also, re: CIs......A lot of the kids who hear really well with them, had some hearing before with hearing aids. With kids who never were able to hear with hearing aids, end results are very mixed. You kid will probaly be able to hear some, and to speak some.....but not as well as a kid who was able to hear some with hearing aids or who had a progressive loss.
 
Welcome to AD! :wave:

Great bunch of folks around here that are super-willing to answer any questions that you may have. I've learned a lot from everyone.

Dave
 
Hi!

I posted on your thread on the HA/CI forum, but wanted to pop in here, too.

There is a lot of great info out there and a lot of not so great info. So, read a lot, try to sift through it all and come to your own conclusions.

Like a PP said... a CI is not a cure. It is a tool, like an HA is a tool. It is just a different kind of tool.

This is a very personal journey you have embarked on. There are no wrong or right decisions. Just decisions. And only you and your family can decide what is right for you.

Please visit the blog I set up for my 16 month old daughter who was implanted at 14 months. It may shed some light on what could be ahead for you, if that is the path you choose for your daughter.

Erin Toes and her Cochler Implant Journey

It is an exciting and a terrifying journey. But, most of all, it has been a miraculous one for our little girl.

A much better blog to read is the one Cloggy set up for his daughter. He has fantastic information posted.

Lotte Sofie

I look forward to hearing more about your sweet girl and her progress!
 
a CI is not a cure. It is a tool, like an HA is a tool. It is just a different kind of tool.
Click to expand...
and just as with hearing aids, results with CIs vary tremedously. Yes, there are some functionally hoh CIers, but end hearing results vary tremendously!
 
Nirenameit, Welcome! You have definately come to the right place!. There are several parent here that have chosen the same path. Check out the Hearing aid/Cochlear implant section. Thats where most of us hang out.
Oh, I noticed you are from Ft.Campbell, so whos serving? I spent a few years in the Army, also there is an Army dad here as well. He is Armymechanic.
Once again, welcome.
If you have any questions, no matter how goofy, or embarrassing, feel free to pst. If you do not feel comfortable posting, PM me.
Just so ya know, Lille was diagnosed just before her first birthday, she had hearing aids for about 6 months beforeshe got a CI. We are now planning on getting her left ear implanted soon.
 
hi

my husband is the one serving in the army, he just got home from his year long tour in iraq. Its been a hard year without him here and all my dd's problems and my 2 year old driving me nuts also, lol. We find out in December if she is a canidate for implants. Right now she just keeps pulling out her pink HA's, and her right one wont stay in. Does this mean she needs a new mold? The molds were made over a month ago.
 
1.gif
to AD.. I hope you will enjoy the stay with us and happy posting away! :)
 
nirenameit said:
She got her first pair of hearing aides a few weeks ago. She hates them and tries to pull them off all the time.
Click to expand...

Hi, Welcome to alldeaf. I am proud being deaf. I wore hearing aids but I hate it so much because it hurt my ears and my head. It cause me dizzy. I believe that your daugther have same problem that she keep pull them off all the time. I don't want offend you but why cannot you respect her wish?

I was very suffered that my teachers forced me wear hearing aid or hearing with machine that I really hate. My mom didn't like what they done to me. My mom respected my wish. I never wear them at home but only school. I will never force any children to wear if they dont like wear them. I will let other children wear if they like to wear. I am sorry if I offend you.
 
Reply to ghsh1996

Hi ghsh1996, No you didnt offend me, she is just one year old and shes not used to wearing them and doesnt understand what they are for, thats why i think she pulls them off. For right now i want her to try and wear them but as she gets older I will allow her to make her own decision on weather or not to wear them. The Audi told me that if she doesnt wear them she will never learn to talk because she cannot understand what we are sayin to her. I would like for her to be able to talk some even if she chooses not to wear them later and signs instead. So no you didnt offend me because everyone has thier own opinion on whats best, and that was your opinion and i thank you for sharing it with me. :)
 
nirenameit said:
Hi ghsh1996, No you didnt offend me, she is just one year old and shes not used to wearing them and doesnt understand what they are for, thats why i think she pulls them off. For right now i want her to try and wear them but as she gets older I will allow her to make her own decision on weather or not to wear them. The Audi told me that if she doesnt wear them she will never learn to talk because she cannot understand what we are sayin to her. I would like for her to be able to talk some even if she chooses not to wear them later and signs instead. So no you didnt offend me because everyone has thier own opinion on whats best, and that was your opinion and i thank you for sharing it with me. :)
Click to expand...

Thats good that I didnt offend you. I think your Audi is half wrong and correct. My ex husband know how speak well that he dont wear hearing aid but he dont realize if he is too loud or not. My old friend is hard of hearing and wore hearing aids. She speak so smooth like hearing. She said her teachers and speech teachers were working with her to learn how speak. I met many oral deaf people. Some dont wear hearing aids, they know how speak and read lips. Some people wear hearing aids. I learned how speak without hearing aid. I know that my voice is very weird because i cannot hear myself. I didnt learn how read lips because My mom put me in sign so I learned how sign. My husband is a hearing. I have to use voice to talk during I sign. He said he understand me well.
 
ok question for you

Ok so if she doesnt wear her HA's then she can still learn to talk but it just wont be as clear as a hearing person talking? Since she has not heard anyone talk before im afraid she wont be able to talk if she doesnt wear them. Im not sayin that she has to talk, becasue if she doesnt learn to talk thats ok with me, but i want to give her the oppertunity to do so. Sorry i ask so many questions but im new to all this and want to understand my options and her options on all this. I already know that she will be doing speech therapy, and her therapist right now is trying to get her to say words like dadda and mumma because she does not say anything at all right now except for ahhhhhhh!! lol. They also are tryin to start her with simple sign language for mumma and dadda and eat and drink and words like those. I am also tryin to teach my son who is 2, and my husband signs because we all want to be able to communicate. If i choose to have her wear her HA's or have CI's will her speech be more clear then if she doesnt? Just want to know what everyones expierence with all this is. Thanks!
 
For right now i want her to try and wear them but as she gets older I will allow her to make her own decision on weather or not to wear them. The Audi told me that if she doesnt wear them she will never learn to talk because she cannot understand what we are sayin to her. I would like for her to be able to talk some even if she chooses not to wear them later and signs instead
Click to expand...
WOW! That's an awesome, awesome awesome VERY healthy state of mind to have.
Just wanted to commend you. Wish more parents thought your way!
As for the oral skills...... there are kids out there who learned how to talk with very minmal hearing. I do know that most orally sucessful kids are the product of the private oral schools, or of families who really adopted auditory verbal as a lifestyle. (aka the parents who give their kids toys to increase their SAT scores)
Also, some profoundly deaf kids can hear a percentage of what's said even without hearing aids
 
Back
Top