Its Not The Parents Fault....

[kayla123]

Good Thread there, ^Angel^.

My opinion, I sometime wish the parents can give kids some of the time so they can tell their parents if they want to have CI or not. Since, I saw my friends who already have CI which they aren't happy because their parents "forced" them to getting CI early age which they don't like it. I do respect parents for having their kids to getting CI early. I don't mind if their kids want to getting the CI because they want it, not parents. That's what I feel comfortable since I saw my friends' feelings who already have CI. Don't get wrong idea, I don't hate kids' parents who are getting their kids CI, I just respect them and hope they will be happy. If they aren't happy, I hope they will understand why their parents want them to getting CI because I asked some of my friends' parents why they wanted to getting their kids to have CI in early age, they said because of can become hearing. I was like eh, can't become hearing in a second, it have to take few years to be understand almost 100% or something like that. Also, I have a best friend for 19 years which she got CI in 6 years ago, I know it's late but she hear pretty better but she is trying to understand people's talking but not enough because it's sort of late. I respect her for wanting the CI. I saw her happy with it, I'm happy for her.

And, once my mom took me to Tennessee for CI. The doctor gave me the test when I was maybe 5 years old, I'm not sure. Few hours later, doctor told my mom to choose to give me the CI or not, he's not going to force my mom to give me one because, if I get the CI then I can become retard in 50% of chance. My mom turned it down because of the risk for me to be retard if I get CI from the Surgery. I thank my mom for not letting that risk. I'm happy with my deaf, I don't need CI since I cannot talk that VERY good, just simple words like "No" "Mom" such like that plus don't read the lips that good, only simple words same like I said about talk. Because I was very stubborn to not learn to speaking and reading the lips. I wish that I know how to talk and read the lips, that's alright. Im happy with myself right now [/QUO I dont blame your mom for not taking the risk. Why would there be such a risk of being retarded? Thats the first time i've heard of that.

 

[neecy]

I too, have never heard of a chance of retardation from implanting a CI. Perhaps this was back when CI's were still in their infancy?

 

[WhisperHorse]

I dont blame your mom for not taking the risk. Why would there be such a risk of being retarded? Thats the first time i've heard of that.

Yeppers, I don't blame my mom for that too. Also I'm very glad that my mom didn't take that risk because I can't IMANGE myself to be retard since Im deaf only and Im very fine right now oh really, that's the first time that you have heard of that. I didn't know, I thought it's common. I guess I'm weird person.

 

[Angel]

I dont blame your mom for not taking the risk. Why would there be such a risk of being retarded? Thats the first time i've heard of that.

Perhaps it happened way back when CI was first out

 

[neecy]

Perhaps it happened way back when CI was first out

That's what I think too.

oh really, that's the first time that you have heard of that. I didn't know, I thought it's common. I guess I'm weird person.

Not at all! If this was back when you were a child, and CI's were still "new technology" it could very well have been a side effect that was considered. Fortunately I've never heard of such a thing happening and hope there never is.

 

[Boult]

Yeppers, I don't blame my mom for that too. Also I'm very glad that my mom didn't take that risk because I can't IMANGE myself to be retard since Im deaf only and Im very fine right now oh really, that's the first time that you have heard of that. I didn't know, I thought it's common. I guess I'm weird person.

Me too, never heard of having a ci will make someone retard. not a fact though..

Just wondering if you could ask your mother again to clarify what the doctor really told her? I would like to hear more on that. But not really necessary though

 

[WhisperHorse]

Perhaps it happened way back when CI was first out

Maybe or maybe not... Because the doctor said that something in behind of my ears that isn't good strong enough for the CI that will might cause me become retarded, I'm still afraid to take that risk. Another reason, I don't want to get CI becuase of can't talk and read the lips that good. Is it worth for me? No, it's not.. But I respect people who want to get ci or already have ci, I'm happy for them to having that. But I'm sorry for mostly % people in my life that I knew who already have CI and aren't happy with it.

 

[WhisperHorse]

Me too, never heard of having a ci will make someone retard. not a fact though..

Just wondering if you could ask your mother again to clarify what the doctor really told her? I would like to hear more on that. But not really necessary though

It's a fact. Doctor said that because of muscles and something in behind of my ears that's not strong enough for CI and it could destory and makes me retarded which same like people said it's MIGHT happened in way back in the past when I was kid in around late of 1980's and early 1990's. They aren't same PRESENT from the tech.

 

[Boult]

It's a fact. Doctor said that because of muscles and something in behind of my ears that's not strong enough for CI and it could destory and makes me retarded which same like people said it's MIGHT happened in way back in the past when I was kid in around late of 1980's and early 1990's. They aren't same PRESENT from the tech.

ok then he may not means "mentally retarded" he could means facial deformity because earlier CI does not use the current technology to protect the facial nerves. So in other word, using earlier ci procedures may cause facial retardation. While today, we have technology to make sure the facial nerves are functioning while performing surgery. So would that be the case?

 

[Tousi]

Perhaps so, but as with 'all' businesses...they're out to make money, right? Would you 'not' believe for one minute perhaps when a doctor or staff would make a decision partially, I mean--partially...based on the fact it's good business for them? Not saying that 'all' would derive from enacting in this manner.

That said, whether or not I agree, I want to interject that Man is an ever-curious animal and in the field of medicine, for example, there's this constant inner drive to improve, to cure, to fix, to heal, etc........I don't think money is first in the minds of these individuals. They have probably been carrying this desire to help/contribute to the betterment of us all since childhood.

 

[Angel]

ok then he may not means "mentally retarded" he could means facial deformity because earlier CI does not use the current technology to protect the facial nerves. So in other word, using earlier ci procedures may cause facial retardation. While today, we have technology to make sure the facial nerves are functioning while performing surgery. So would that be the case?

What does that really mean by facial retardation? what does it exactly do to you?

 

[Boult]

We all have to keep in mind, as medical technologies improves, the numbers of side effects are reduced. In the past, we have facial retardation (ie: droopy face), facial twitching due to singed nerves, facial numbness. now as we progressed forwards, we put in measures to removes those side effects.

Of course, all surgeries are not without risk. and that ci are not for everyone. of course, we are aware that CI may be beneficial for a person but it may turn out that the cochlea are not formed correctly ie: ossified cochlea, porous cochlea where electrode may stick thru the wall. such like that which is why CT-Scan or MRI are performed to make sure the integrity of cochlea is intact. if it was found to be ossified then parent can make decision to drop or switch to other brand that is best qualified to deal with ossified cochlea.

 

[Boult]

That said, whether or not I agree, I want to interject that Man is an ever-curious animal and in the field of medicine, for example, there's this constant inner drive to improve, to cure, to fix, to heal, etc........I don't think money is first in the minds of these individuals. They have probably been carrying this desire to help/contribute to the betterment of us all since childhood.

I agree, tousi...

 

[Boult]

What does that really mean by facial retardation? what does it exactly do to you?

if it is a child and as child grow, the face may not develop properly so you get the idea of this word "retardation"

Of course, CI can't make a child mentally retarded because the brian is not interfered or probed so no direct contact to brian. just skin, bone, cochlea. so it must be something else than "mentally retarded"

that's why It could be that "facial retardation" or such.

 

[neecy]

Also some people temporarily experience a change of sensation in their tongues because those nerves are very close to the cochlea. I experienced that loss of sense of taste on the right side of my tongue, and a "metallic" sensation for a few months, then it came back.

 

[Angel]

Ahh I got it now, many thanks to you both

 

[Cheri]

I tried to tend to see both sides of issue, but when some of us don't agree with implanting children at the young age, we are consider to be close minders, That's not the case. We happened to care about those children's right to have a voice to be heard, to have an opportunity to have that choice. When I tried to say that often, an argument becomes a never-ending circle, between hearing parents with implant children, CIers and Deaf people because of opposite beliefs. I do not believe that deaf children need to become "hearing-like" or normalized, just because the family are all hearing. They're capable to successfully at speech with hearing aids, I've seen some hearing parent rushes so quickly having their five months old child implanted with a CI. That's so young the same time, How do you really know hearing aids doesn't help? Could a 5 months old can tell you that she/he cannot hear with hearing aids? It's not my role to tell parents what to do, But, we owe those children our patience.

I do know for matter of fact when every hearing parents first learned that their child is deaf, Their very first reaction would be shocked. Why? The answer is very easy, No one in family had been deaf. One of my pet peeve about hearing parents seeing CI as the magic cure for deafness, When I said "cure" It doesn't mean 100 percent hearing. In another word it means better than hearing aids when hearing aids are wore only for a very short period of time. I hate to see decisions being made by hearing family wishing the child to be "normal." If you want best for your child, fine, but if you're doing this just to make your child to be hearing like yourself, then that is wrong.

Sorry for taking long, I needed the time to think what to say. I'm sure everyone is right ahead of me.

 

[Roadrunner]

I don't think money is first in the minds of these individuals. They have probably been carrying this desire to help/contribute to the betterment of us all since childhood.

Which is why I didn't imply first, it's partial to how they may consider doing such things and I agree that most of them (hopefully *crosses my fingers*) would be contributing in ways we can truly benefit from...with all the advancements being made in the medical field.

 

[neecy]

I've seen some hearing parent rushes so quickly having their five months old child implanted with a CI. That's so young the same time, How do you really know hearing aids doesn't help? Could a 5 months old can tell you that she/he cannot hear with hearing aids?

From what I understand, nowadays they can actually measure brain activity to see if there is any recognition of the sound that is being input by the HA. If there is NO response to sound from an HA then they can be reasonably sure there is no benefit from them.

I thought a child had to be at LEAST a year old in order to be implanted? Are they really implanting as early as 5 months old?

 

[Cloggy]

I too, have never heard of a chance of retardation from implanting a CI. Perhaps this was back when CI's were still in their infancy?

It came up in other topics and questions were asked to how this came to be.
It was ignored, and now it pops up again.....