Inspiration for the late deafened crowd...

posts from hell said:
This is a personal friend as many of you know.

Colorado Public Radio - Feeling the Music
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Wow thanks for sharing that..smile since I became deaf only 7 yrs ago, and overnight..I know the challenges. If I may add..when I lost my hearing, I lost my contract (job) witht the Feds..so I lost financial security, lost alot of friends who simply did not have the patience to try to communicate with me, lost my husband, my mom who was my savior at the time passed away shortly after,
lost my ability to use the phone which was the way I solved any problems,,I am a communicator. I do speak perfectly..but..just last year lost my companion dog Luke of 14 yrs..But my brother is an accomplished guitarist and he never failed to sit with me and I put my hand in his guitar and he played me songs I knew. I miss music so much ..but can"t even hear my own voice. I sing along once he tells me what he"s playing and since we started doing this for me..lol
he has started to teach me to play one of his guitars that I can feel the vibration the most..I love him..and you know what..I am still positve...I can not use a HA and Drs at Johns Hopkins a renowned medical facility say a CI won"t work either
they never found out why i went deaf overnight..they tell me I have a genetic marker that indicates I could have lost my hearing at any point in my life...Thank God I remember so much of the music..at least up to 7 years ago...:wave:
 
Nice link, PFH...and thks.! I miss music very much. It's been a very, very long time since I've heard music, but the old songs/lyrics remain with me, even the beat of the musics.
 
Very inspiring. And I would think not just for the late deafened. Thanks for sharing that.:ty:
 
Which reminds me....it's about Christmas, and all the songs run thru my head, just as if I just heard them....I remember them well!
 
I have had Burl Ives singing Rudolph the Red-Nosed Reindeer going on and on for the last 2 days. I've also been getting all of Handel's, The Messiah. Not bad after 4 1/2 years of total deafness.
 
KristinaB said:
I have had Burl Ives singing Rudolph the Red-Nosed Reindeer going on and on for the last 2 days. I've also been getting all of Handel's, The Messiah. Not bad after 4 1/2 years of total deafness.
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Were you around when I was discussing musical hallucinations experienced by the late deafened?
 
Yes I was. I still get a kick out of hearing all these songs in my head. Sometimes, it's exasperating, but most times I can deal with it.
 
KristinaB said:
Yes I was. I still get a kick out of hearing all these songs in my head. Sometimes, it's exasperating, but most times I can deal with it.
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Yeah. It helps when you understand that it is the brain's way of filling those gaps of silence that used to be filled with sound. I find the whole phenomenon fascinating.
 
jillio said:
Yeah. It helps when you understand that it is the brain's way of filling those gaps of silence that used to be filled with sound. I find the whole phenomenon fascinating.
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So do I :)

As most people here know I was born with right sided SSD +120db, and almost normal hearing on my left. I had frequent ear infections which then lead to permanent mild/mod loss (fluctuating) on my left - I also (interestingly enough) have APD.

The really ODD thing, is that I have a nearly eidetic memory for music - by which I mean that if I hear AND feel (vibrations) a piece of music I almost always am able to "play it back" in my head and have it sound identical to how I originally heard/felt it - like a CD playing in my head.



Regarding the OP's post - I can completely relate as I've played musical instruments since I was about 6 (piano, violin, flute, sax, clarinet, piccolo, trumpet, Bassoon etc). I actaully played in a semi professional orchestra for a number of years (I played flute and Piccolo - mainly Picc, the upper freqs I actaully hear reasonably well) and played a concert with the professional symphony orchestra in my city when I was only 17years old (playing flute & piccolo for the Saint-Saëns organ symphony). I typically practice in bare/socked feet while facing either a flat wall, or a corner (depending on what I'm practising rehearsing) so that the sounds & vibrations reflect back to me... I also rehearsed (ie orchestra/group ensemble practices) in bare feet/socks (so I can "hear" better via the vibrations) and either short sleeves, or long sleeves of a light weight material to optimize the vibrations in the air - actually, in Orchestra concerts (since Flutes & piccolo sit mid orchestra behind the violin section and our feet aren't really visible) I'd often subtly slip off my shoes during a concert and tuck them under my chair so that I could hear& feel the other instruments well.
 
I have been profoundly deaf for 48 years, and the music remains. Especially the Christmas songs. And it's never silent with me....sometimes it's a nuisance, especially when I try to sleep....but I've adjusted well, still have my speech and lipreading. And play it this way, music helps me be happy!
 
rockin'robin said:
I have been profoundly deaf for 48 years, and the music remains. Especially the Christmas songs. And it's never silent with me....sometimes it's a nuisance, especially when I try to sleep....but I've adjusted well, still have my speech and lipreading. And play it this way, music helps me be happy!
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I think I remember Abbie/Contradica (maybe?) writing about the experience of looking at the whistling tea kettle and hearing the whistle -- even with her CI off, looking away and not hearing it, and back and forth. Her brain filled in the sound each time she glanced at the steaming tea kettle.
 
Anij said:
So do I :)

As most people here know I was born with right sided SSD +120db, and almost normal hearing on my left. I had frequent ear infections which then lead to permanent mild/mod loss (fluctuating) on my left - I also (interestingly enough) have APD.

The really ODD thing, is that I have a nearly eidetic memory for music - by which I mean that if I hear AND feel (vibrations) a piece of music I almost always am able to "play it back" in my head and have it sound identical to how I originally heard/felt it - like a CD playing in my head.



Regarding the OP's post - I can completely relate as I've played musical instruments since I was about 6 (piano, violin, flute, sax, clarinet, piccolo, trumpet, Bassoon etc). I actaully played in a semi professional orchestra for a number of years (I played flute and Piccolo - mainly Picc, the upper freqs I actaully hear reasonably well) and played a concert with the professional symphony orchestra in my city when I was only 17years old (playing flute & piccolo for the Saint-Saëns organ symphony). I typically practice in bare/socked feet while facing either a flat wall, or a corner (depending on what I'm practising rehearsing) so that the sounds & vibrations reflect back to me... I also rehearsed (ie orchestra/group ensemble practices) in bare feet/socks (so I can "hear" better via the vibrations) and either short sleeves, or long sleeves of a light weight material to optimize the vibrations in the air - actually, in Orchestra concerts (since Flutes & piccolo sit mid orchestra behind the violin section and our feet aren't really visible) I'd often subtly slip off my shoes during a concert and tuck them under my chair so that I could hear& feel the other instruments well.
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You would really enjoy the book my Oliver Saks called "Musicophillia". He describes a couple of case studies very similar to your own situation. I have also hypothesized that this was probably the case for Beetoven, as well.
 
jillio said:
You would really enjoy the book my Oliver Saks called "Musicophillia". He describes a couple of case studies very similar to your own situation. I have also hypothesized that this was probably the case for Beetoven, as well.
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I remember saying that about Beethoven to my mother once who decided to discount what I said to her.
 
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