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Try to see if you can find a manual for AHCCCS health care providers on line.  Then you can look it up yourself to see what the rules are.


If you do decide to ask for a copy of your records and you do have to pay copy charges, don't ask for a copy of the MRIs or any films because that would be expensive.  Just ask for copies of the audiograms and notes on your appointments.  (Or even pass on the audiogram unless you think the audi gave you an incomplete copy.)  The notes probably wouldn't be that many pages.  You could get 20 pages of notes for $1.00 at the rate they quoted you -- and if you only had two appts. -- I doubted that they there are that many pages of notes in your medical file.



 

  I think one of the symptoms of  low blood pressure  can be dizziness.




 


Gradual hearing loss can be hard to detect.  I've heard that for at least some people with hearing loss due to Meniere's, their hearing fluctuates very wildly and they notice it.  I don't know if eveyone with Meniere's has that symptom.  When you have time, I would do a search for Meniere's in this forum and also the two web sites I gave you upthread. 


I suggest if possible getting a copy of your medical records (but not including any film, including the MRI because of expense).  Then I would put together a list of questions.  One of your questions could be why Meniere's was ruled out.


Since you don't hear well, see if you can e-mail your questions to the doctor or mail them with a stamped self-addressed return envelope.  You shouldn't have to wait until your next appt. to get your questions answered.  You should be able to get them answered now.


Or sometimes a doctor's office have an arrangement where the first level of  questions are answered by a nurse.  My primary physician has that arrangement and a free appt. can be made with very little waiting time.  If the nurse can't answer the question by reading your records, then he or she can ask the doctor.  Maybe your ENT has that same arrangement.





Try doing a search under google and also at this forum.  I saw a post about Starkey's foundation for free hearing aids at this forum since I joined less than 2 months ago.





There's at least two different reasons why your ears could hurt from loud noise like the school band.  It could be Hyperacusis, another thing for you to look up. ;)  It could be recruitment.   A short explanation of recruitment is that people with hearing loss due to a condition in the inner ear, have a narrower range of comfortable hearing than people without a hearing loss.  We not only need sounds to be louder (which is well known), our tolerance for loud sounds are also lower (not as well known, but still true).   For a longer explanation see this article.


Because of this condition, hopefully your battery of audiogram tests included ones that will tell you your MCL and UCL. You need that information in order to get fitted for hearing aids.  The UCL also helps confirm whether your loss is due to something occurring in your cochlear.






I believe our health care system is messed up.  I don't think that most audis get enough time to do a full battery of tests, esp if the patient has tinnitus which can make the pure tone tests difficult. ENTs appts often seem rushed also.  At medicaid rates, I would bet that  appts are probably even more rushed.


That's the reality these days, even with better insurance company coverage.  Which is why I believe we are all better off if we become "experts" about our own particular type of hearing condition.  Not the whole area, just our particular type is good enough.  With that knowledge we can all make better use of our appt. time.   And also, quite frankly, it makes it more difficult for a doctor or other medical professional to give us an answer that doesn't make sense.  Like when the audi told you that your hearing loss was nothing to worry about.  :roll:


Last year I had to make an apt in an area of my health in a hurry without time to do any research first.  FWIW, what I've found helpful is I  asked the doctor to recommend a web site or something to read about the condition.  He did so, and also gave me the nurse's number to call if I had follow up questions with a promise that he would be available to answer any questions that she couldn't answer.  Luckily, handling the situation that way worked out well for me. 


I don't blame you for feeling the way you do, I think a lot of doctors become expert at subtley trying to make us feel guilty for asking questions so they can hurry the appt. along.  But we do have the right to ask questions and to know the exact status of our ears and hearing. So ... my suggestion to you is to get more comfortable asking them questions. :)


Again, I think you have the right to get the answers to your questions about your recent appts. now.  If I were in your situation, I would do my best to get appts with a new audi and a new ENT in 6 months.  If your insurance company will allow it, I'd try to get another appt. with a new audi before that.  Maybe Starkeys or the Lions club will come through, and wouldn't it be nice to have a reliable audi in place so you could get the right type of HAs for your loss?





I don't feel comfortable giving advice in this area. I did find some old threads about this topic at AD though --


http://www.alldeaf.com/hearing-aids-cochlear-implants/66064-ear-wax.html


http://www.alldeaf.com/hearing-aids-cochlear-implants/52604-itchy-ears.html





Not at all.  Frankly I appreciate the opportunity to "pay it forward."  Many people have helped me in many areas of my life, I doubt I'll ever get to the point where I can call it even. :)


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