I was wondering if someone could help me?

jenniepepsi

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I had my 'box room' test, and all my doctor told me was 'you have some hearing loss but its nothing to be worried about' then i asked him for details and he just handed me the audiogram.

what i am wondering is HOW severe is my hearing loss? i hate it when doctors tell me general info and then 'dont worry about it' i DO worry about it when i dont have ALL the info :(

on my paper, all of my markers (when i pushed the button) were in the are of 50-60 (Db), and on the far sides (20-40hz, and the other side at 12k hz) i could hear nothing.

so does this sound mild, moderate, severe, ect?

thank you!
 
audiogram creator

As a start, you can plot your points for each ear on something like this audiogram creator, and see in what category your loss fits.

If you choose audiogram background option 3, you can see where the speech sounds fall and where it maps up against your loss.

Some info about reading your audiogram.
 
Seems to be you have a doctor who isn't very helpful...My present one is about the same!...Leaving it all "up in the air" for me to figure it all out!....The doctor just doesn't want to take the time with you.....I would have not left that office until all my questions were answered and I understood everything...you are owed that much.
 
If the majority of your results were in the 50, 60 dB loss range and your doctor let you leave without discussing your options -- I would say that he was worse than simply not helpful. I would say he was guilty of malpractice.

Try to find another audiologist.

Do you have an ENT (Ear, nose and throat doctor) also? IMHO, ENTs are part of a very broad specialty, a specialty that is so large that if you have the option I strongly suggest trying to find one that has specialized in ears within the ENT specialty. When considering a new ENT try to find out what percentage of his practice deals with ears only. Your regular doctor may be able to help you with this -- but at the very least you can ask the ENT
s receptionist. I realize it may be easier to find an ENT that has a sub-specialty in ears (Otology and Neuro-otology) in larger cities.


ETA: Here's a wiki article that has a chart that shows all the sub -specialties within Otolaryngology (ENT). It's almost in the middle of the web page. Most of us on this board would be interested in an ENT that has a sub-specialty in Otology and Neuro-otology.


ETA2: I realize from reading the posts at this forum that there are at least a few people who aren't Wikipedia fans. I don't want to argue about that in this post -- I think we can all agree that the chart in question is a handy way to summerize well known facts about Otolaryngology (ENT).
 
thank you everyone. im not sure if i can get a different audiologist, its an audiologist that works with my ENT in his office a few times a week. but i could try getting a new ENT all together.

im gonna go use that audiogram creator real quick. ill come back and report what it says lol. thank you all again.

robin im sorry your doctor isnt helpful either.
 
ok so with the audio gram creator thing, all of my marks were half mild and half moderate.

so what should be my next step do you think? a new doctor? or try to talk some sense into my current doc, or is it just not severe enough to need attention?
 
Wirelessly posted (droid)

You would benefit from hearing aids. I would take the audiogram and go to a different audi. No need to change drs. You don't have to use his audi.
 
sorry you contact to ENT better recommand and doctor solve update!
that is difficult!
 
Wirelessly posted (droid)

You would benefit from hearing aids. I would take the audiogram and go to a different audi. No need to change drs. You don't have to use his audi.

^^^ This...
You would benefit from HA's... even someone with mild loss would benefit... actually more than someone with my degree of loss (from what i've seen with myself at least) It would help you... find a new audi... you do not have to stay with the one your ENT recommended... you have the ability to make these choices... really I think your audi just didn't want to take the time to fit you with anything...:roll:

always good to have a second opinion as well... I would get a second audio gram to double check the first one was right... then talk with the new audi about aids...
 
is hearing aids covered by state insurance (im in arizona) i saw some prices and they arent cheap :( but i just finished school and havent found a job yet, so im on medicaid.

thank you all so much for the help. part of me hopes i can get a hearing aide, it would be nice not to have the tv up loud or have to ask people what they said or mistake them for saying something completely off the wall lol.
 
I had my 'box room' test, and all my doctor told me was 'you have some hearing loss but its nothing to be worried about' then i asked him for details and he just handed me the audiogram.

what i am wondering is HOW severe is my hearing loss? i hate it when doctors tell me general info and then 'dont worry about it' i DO worry about it when i dont have ALL the info :(

on my paper, all of my markers (when i pushed the button) were in the are of 50-60 (Db), and on the far sides (20-40hz, and the other side at 12k hz) i could hear nothing.

so does this sound mild, moderate, severe, ect?

thank you!

First off find a new Audiologist, your Dr was rude. They are the best person to ask about hearing loss as nobody is a duplicate in how they hear. Then go from there.
 
Yes, definitely get another audiologist. It wouldn't surprise me if your audiologist didn't give you the complete set of tests either.

Here's an article on what they are and what they tell us:

Demystifying Hearing Testing


As for your ENT, I think you should replace him also.

Usually competent people hire or work with competent people. Clearly your ENT did not hire a competent audiologist, or work with one. I'm not sure what their business arrangement is, but either way this is not a good sign. So I would get another one. When you have a hearing loss you don't want to wait until you have an immediate problem to start finding a good one. Find a good ENT ahead of time. (IMHO, it's the better way to go.)

The only question is ... how soon do you need to replace your ENT?


You didn't tell us about your hearing history. So I don't know if this is a sudden loss or something you had for a while. I also don't know if the audi did enough tests so that it can be determined whether your loss is due to something occuring in the middle ear, inner ear or both, or the auditory nerve.

Depending upon those answers and perhaps other issues, it might be useful for you to have a different ENT right now.

For example, if you had a sudden loss, some ENTs believe that its a good idea to take a short treatement of steroids. If you have a loss due to middle ear issues or something occuring on the auditory nerve ... this would be something you would want to discuss with an ENT -- sooner rather than later.
Esp. if its due to something occuring on the auditory nerve.

( FWIW, if your loss is due to something occuring solely within the inner ear this is good to know also because unless there's a change in one of the battery of audiogram tests -- there's really no need to see an ENT everytime you see an audiologist.

Since once you have a hearing loss its not always easy to tell if you loose more, its recommended to get your hearing tested annually. If your hearing changes you would want to make sure that nothing is going on medically that warrants a disscussion with an ENT (middle ear or auditory nerve issues for example). And of course you would probably want to get your hearing aids adjusted for your change in hearing. The usual recommendation is to get your hearing tested annually. )
 
Id have to disagree with finding an ENT, Id only find one if there is a major problem and if you have insurance otherwise you will pay because they are a specialist, I only deal with my ENT when I need to otherwise I hate going there. For sure find another Audi though, find one you are comfortable with and trust.... I went to an Audi first and they referred me to the ENT anyways because my tests and symptoms were wacked...
 
Well, if jenniepepsi doesn't have insurance, then I would agree to hold off on going to an ENT depending upon the history and the results of an audiogram.
But if there were middle ear issues and possibly auditory nerve issues, I think it would be important to find out what they were.

A good and reputable audiologist would know when to refer their client to an ENT or more diagnostic tests.

Any suggestions on how to help jenniepepsi find a good audiologist?

If it were me, and I had no one to ask for a referral, I would probably ask the audi before I made the appt. if they would do all the tests described in the article at the hearinglosshelp.com web site. I would see how they responded to that question and take it from there.

I've been lucky though and usually able to get referrals from other people with hearing loss.
 
Ok now that i can post replies, give me a moment and i will answer everyones questions.
but first, thank you all so much for your support and help! i think i am going to like it here :) i even saw in the support section someone who also has a love for Pepsi. but their name is only 'Pepsi'
 
Yes, definitely get another audiologist. It wouldn't surprise me if your audiologist didn't give you the complete set of tests either.

Here's an article on what they are and what they tell us:

Demystifying Hearing Testing


As for your ENT, I think you should replace him also.

Usually competent people hire or work with competent people. Clearly your ENT did not hire a competent audiologist, or work with one. I'm not sure what their business arrangement is, but either way this is not a good sign. So I would get another one. When you have a hearing loss you don't want to wait until you have an immediate problem to start finding a good one. Find a good ENT ahead of time. (IMHO, it's the better way to go.)

The only question is ... how soon do you need to replace your ENT?


You didn't tell us about your hearing history. So I don't know if this is a sudden loss or something you had for a while. I also don't know if the audi did enough tests so that it can be determined whether your loss is due to something occuring in the middle ear, inner ear or both, or the auditory nerve.

Depending upon those answers and perhaps other issues, it might be useful for you to have a different ENT right now.

For example, if you had a sudden loss, some ENTs believe that its a good idea to take a short treatement of steroids. If you have a loss due to middle ear issues or something occuring on the auditory nerve ... this would be something you would want to discuss with an ENT -- sooner rather than later.
Esp. if its due to something occuring on the auditory nerve.

( FWIW, if your loss is due to something occuring solely within the inner ear this is good to know also because unless there's a change in one of the battery of audiogram tests -- there's really no need to see an ENT everytime you see an audiologist.

Since once you have a hearing loss its not always easy to tell if you loose more, its recommended to get your hearing tested annually. If your hearing changes you would want to make sure that nothing is going on medically that warrants a disscussion with an ENT (middle ear or auditory nerve issues for example). And of course you would probably want to get your hearing aids adjusted for your change in hearing. The usual recommendation is to get your hearing tested annually. )



Ok, so this isnt sudden. ever since they started testing us in elementary school (around 3rd grade once a year, im 27 years old now) with the headphones and basic 'push the button when you hear a sound' sorta thing, they always sent home notes to my mom that said i needed to see the doctor about my hearing. my mom was very abusive all my life, and always did things for my brother and sister, but never me (no birthdays, no Christmas presents, easter baskets ect) i needed braces too, and i have asthma. but they never took me to get any of it checked.

honestly i cant even TELL that i don't hear good, because i have never been any different. i do have the TV up loud all the time, and i do ask all the time what people say, and im always being told i talk too loud. (usually insultingly by my mom)

as for other medical history, i have aspergers, ADHD, anxiety, severe obstructive sleep apnea (and use a CPAP, which has made my tinnitis worse) i have hypoglycemia and i am what the doctor called pre-diabetic. ive been working hard to NOT become diabetic.

i have always had ringing in my ears (sounds almost exactly like the frequency noises they use for the hearing tests, and hear all different frequencys at different random times, sometimes 2 or 3 different tones/frequencys at the same time) and vertigo, but i dont have meniere's disease the doctor says. i always chalked up the ringing in my ears from when i was a kid and spent a lot of time hanging out in the hangers (navy base) after school waiting for my mom to let me in (she usually slept until at least 5) and i had no ear plugs and the jets were loud.

i have a LOT of build up of wax and i do my best to keep on top of it. it gets so bad sometimes i can actually FEEL it dripping out of my ear lol.


ok about the tests they did. i dont remember what they all were but i can describe it. first i sat in this really cool 'box room' that was completely SILENT. i HATED that part, because the saying 'silence is deafening' is REALLY true. when it is silent, the ringing in my ears gets so bad it feels like my ears are vibrating or tingling and it can sometimes hurt. so i always find a way to keep white noise around, with a fan or something.

lets see. first i did the basic thing, where you listen for the sound and push the button. then i listend to words and had to repeat them (i did perfect on that part so no worries there) then they tested the pressure in my ears, and it was fine, even though i always feel like i have too much pressure.

then we went to another room, where i layed down in a chair that almost felt like i was tilting backwards. and they blew air into my ear. and as weird as it sounds i LOVED it. when they started it, the ringing in my ears went away! completely! it was so cool! but then i started to swim in the world of vertigo lol. that was fun too. it was nice to experiance the sensation and be safe and laying down and calm at the same time instead of panicked.

i hope i got all the questions you asked, and gave you all the info. i tried, i probably forgot some lol.
 
Well, if jenniepepsi doesn't have insurance, then I would agree to hold off on going to an ENT depending upon the history and the results of an audiogram.
But if there were middle ear issues and possibly auditory nerve issues, I think it would be important to find out what they were.

A good and reputable audiologist would know when to refer their client to an ENT or more diagnostic tests.

Any suggestions on how to help jenniepepsi find a good audiologist?

If it were me, and I had no one to ask for a referral, I would probably ask the audi before I made the appt. if they would do all the tests described in the article at the hearinglosshelp.com web site. I would see how they responded to that question and take it from there.

I've been lucky though and usually able to get referrals from other people with hearing loss.

I have medicaid (state insurance) and they dont cover hearing aids for adults, only children. which is good in case a child needs it, but sucky for adults. but with the state insurance, i dont have to worry about the cost of the doctor or tests. they will find out whatever is wrong, and if medically nessisary, will fix it. but a hearing aid is a luxurie to them :( so that would have to wait until i have a job (i just finished school for phlebotomy! hehe) and can get on better insurance.

I live in phoenix AZ if that helps. it would be wonderful if you guys could find me a new place to go. they would have to accept AHCCCS (pronounced Access)

ill go check out that webiste.
 
Jenniepepsi, I'm sorry you had to grow up that way. If it makes you feel any better, my understanding is that its common in a dysfunctional family to single out one child for abuse and not abuse all of the children. It's never the child's fault!

--

I'm also sorry that you weren't able to get help for your hearing loss before, but its great that you are taking care of it now. What a shame that the first audi you met was one that I sincerely believed gave you really bad advice. The only thing I can think of is maybe he thought you can't afford hearing aids so why mention them? But there are ways to get hearing aids, even if you don't have any money, and he shouldn't have given you that advice, based on the information you posted here.

So, I wouldn't rely on anything the audi or ENT said, but start over with new people.

Hopefully, maybe someone here can give you a referral, or an idea on how to get a referral in your area. One way might be to call the Arizona School for the Deaf and Blind and ask them for a referral. Their web site says they have a campus in Phoenix. But I would wait to hear from other posters here whether they think its a good school or not.

If you get a few referrals ask the doctor about the tests they will do using the hearinglosshelp.com article as a reference. Medical references don't always pan out because sometimes professionals get referrals because they are good at politics and not because they are actually the best audi or ENT for patients. That's why when possible I like to ask patients (very knowledgeable ones of course :) ) and not organizations for references.

--

Since your insurance won't cover hearing aids but will cover medical care, you have even more of an incentive to find out how much if any of your loss is due to middle ear issues and not inner ear issues.
Some middle ear issues can be handled medically or surgically and that would be covered by your insurance. If it turns out that you have a condition that can be treated surgically, you should post again because there is more to consider.

IMHO, since this is the first time that you are getting your hearing medically evaluated, you also need to rule out acoustic neuroma, or a tumor on the auditory nerve. It is unlikely that you have it because its so rare, but I still think it should be ruled out.

Also, IMHO, you really need to nail down why you have vertigo.

--

Your hearing loss may be caused by noise or maybe not. Your hearing loss may have more than one cause too. BTW, did anyone else in your family have a hearing loss?

--

Ear wax -- sounds like you have a lot! Did you get it removed before your audiogram? I can't believe I'm asking that question, but your audi sounds so bad, I am. Obviously ear wax build up can affect how well you hear and how well you would do on an audiogram.

You are probably going to want to deal with it. There are ways to manage it -- but I hesitate to go into them. No one is suppose to use those methods if their ear drum is perforated but I don't know how you are suppose to tell if it is, its not necc. painful if your ear drum has a hole in it. Perhaps other posters have suggestions or maybe the best thing to do is to get regular appts to have a doctor remove the ear wax.

If you end up going to the doctor to have your ear waxed removed you still have to deal with the build up and the disadvantages of build up -- including decreased hearing.

Another reason you will want to deal with your ear wax is because once you start wearing hearing aids, it will probably increase.

--


So, these are my thoughts for now. Hope some of them are helpful. But keep in mind I'm not a doctor or audi! Just a person who grew up HH and reads a lot. :)
 
thank you so much for all of this. im gonna answer everything IN your quote with purple k?

OH and i almost for got that they also did an MRI. i had to have an open one cause of anxiety in the big tube. and the ENT said it came back normal. im not sure if that helps.

Jenniepepsi, I'm sorry you had to grow up that way. If it makes you feel any better, my understanding is that its common in a dysfunctional family to single out one child for abuse and not abuse all of the children. It's never the child's fault! Thank you, it took me a long time to realise that (26 years!) i still have doubts sometimes, and i still strive for my parents to love and accept me. my sister and brother just shrug it off, but my brothers wife (my sister in law) supports me and agrees that my mother is some words that i cannot say here lol

--

I'm also sorry that you weren't able to get help for your hearing loss before, but its great that you are taking care of it now. What a shame that the first audi you met was one that I sincerely believed gave you really bad advice. The only thing I can think of is maybe he thought you can't afford hearing aids so why mention them? But there are ways to get hearing aids, even if you don't have any money, and he shouldn't have given you that advice, based on the information you posted here. He did know that i only have state insurance, and so far as i know most of the doctors here in phoenix knows what AHCCCS will cover and what it wont. my primary care doctor wants me to have the gastric bypass surgery, but he said we cant do it until we can take a long time and SHOW the insurance people that its needed (my BMI is at like 52, and diets make me GAIN weight, and excersize is almost impossible because of my size and asthma and apnea so it sucks lol)


So, I wouldn't rely on anything the audi or ENT said, but start over with new people.

Hopefully, maybe someone here can give you a referral, or an idea on how to get a referral in your area. One way might be to call the Arizona School for the Deaf and Blind and ask them for a referral. Their web site says they have a campus in Phoenix. But I would wait to hear from other posters here whether they think its a good school or not. Ok thank you, ill go and maybe at least call and see if they have any resources

If you get a few referrals ask the doctor about the tests they will do using the hearinglosshelp.com article as a reference. Medical references don't always pan out because sometimes professionals get referrals because they are good at politics and not because they are actually the best audi or ENT for patients. That's why when possible I like to ask patients (very knowledgeable ones of course :) ) and not organizations for references.

--

Since your insurance won't cover hearing aids but will cover medical care, you have even more of an incentive to find out how much if any of your loss is due to middle ear issues and not inner ear issues.
Some middle ear issues can be handled medically or surgically and that would be covered by your insurance. If it turns out that you have a condition that can be treated surgically, you should post again because there is more to consider. if my loss is just basic mild loss, would one of those sound aplifyer things work? the ones they sell on infomercials? bascially an earbud headphone, and a microphone that picks up the sound and turns the volume up? i thought about it but also thought it might do more harm than good, and just make things worse over time

IMHO, since this is the first time that you are getting your hearing medically evaluated, you also need to rule out acoustic neuroma, or a tumor on the auditory nerve. It is unlikely that you have it because its so rare, but I still think it should be ruled out. would they have seen a tumor in the auditory nerve in an MRI? and ill have to google acoustic neuroma lol.

Also, IMHO, you really need to nail down why you have vertigo. the vertigo may not have always been around. i THINK it may have come around when i was around 19 or 20, (actually not long after i gave birth to my daughter, not sure if that would be a connection)

--

Your hearing loss may be caused by noise or maybe not. Your hearing loss may have more than one cause too. BTW, did anyone else in your family have a hearing loss? not that i know of. no one in close family like parents siblings aunts uncles grandparents cousins, ect. i dont know EVERYTHING about EVERYONE though, i could probably email my grandma and ask her

--

Ear wax -- sounds like you have a lot! Did you get it removed before your audiogram? no they didnt. :( I can't believe I'm asking that question, but your audi sounds so bad, I am. Obviously ear wax build up can affect how well you hear and how well you would do on an audiogram.

You are probably going to want to deal with it. There are ways to manage it -- but I hesitate to go into them. No one is suppose to use those methods if their ear drum is perforated but I don't know how you are suppose to tell if it is, its not necc. painful if your ear drum has a hole in it. Perhaps other posters have suggestions or maybe the best thing to do is to get regular appts to have a doctor remove the ear wax. i dont THINK my ear drug has a hole. can my regular doctor tell with just a visual look in my ear? cause he never saw any problems with my ears except a lot of buildup.

If you end up going to the doctor to have your ear waxed removed you still have to deal with the build up and the disadvantages of build up -- including decreased hearing.

Another reason you will want to deal with your ear wax is because once you start wearing hearing aids, it will probably increase.

would a qtip and some peroxide help dry up some of the wax? not a lot obviously and carefully with the qtip?
--


So, these are my thoughts for now. Hope some of them are helpful. But keep in mind I'm not a doctor or audi! Just a person who grew up HH and reads a lot. :)thank you so much hon! *hugs* !
 
thank you so much for all of this. im gonna answer everything IN your quote with purple k?

If you can ... going forward add in this tag [ / quote ] but with no spaces to break up the person you're responding to message.

Because that way they can respond to your message. Right now I can read your msg, but I can't quote it when replying and that may make my response a little confusing.

OH and i almost for got that they also did an MRI. i had to have an open one cause of anxiety in the big tube. and the ENT said it came back normal. im not sure if that helps.

Well, I'm glad to hear they did an MRI. An MRI would be able to detect if you had a tumor on the auditory nerve. Of course I don't know what part of your body or ear the MRI was aimed at and I think you already know I don't have a high opinion of either your audi or ENT.

I suggest asking your ENT what the MRI was for -- what conditions it was intended to rule out or rule in. If he doesn't say so on his own, ask if he was able to rule out acoustic neuroma (tumors on the auditory nerve).

Perhaps the MRI showed the condition of your middle ear and inner ear. I would ask about that as well.

I would also ask for a complete copy of your medical records from both the audi and ENT. This should be a copy of the type of records they would give to another physician and not necc. the copies they tend to give to patients. Its your right to have a copy of those records. Then, at your leisure, you can look up every single word in a medical dictionary online and figure out exactly what they did and what they know so far.

But I have a theory that people are either trustworthy or not -- so, if I were in your situation, I would still prefer to see another audi and ENT.

The thing is though, I don't know what your options are under Medicaid. I just realized that you may not be able to see another audi or ENT soon, unless perhaps you can prove that you didn't get all of the tests that you were suppose to get. Let me know if you have any questions about the hearinglosshelp.com article.

It may be possible that you have vertigo due to your anxiety issues. Do you have blood pressure issues also? You may have vertigo due to that.

The ear conditions that I heard of that cause vertigo are auditory nerve tumors and Meniere's. You said that they said you don't have Meniere's. If your hearing loss doesn't fluctuate, that may be why they don't think you have Meniere's -- but I would go ahead and read about this on your own.
There are other ear conditions that can cause vertigo, but I don't remember what they are offhand.

One of the best things you can do as a person with hearing loss is to become very knowledgeable about this area. ENTs and audis are under financial pressure to keep their appts short -- so the best thing you can do is to be very prepared for your appts and being knowledgeable helps. Becoming knowledgeable about your particular hearing loss and symptoms helps even more.

If that is what you want to do than I suggest starting to read reputable web sites. Those include ones that are connected to the government or to well known hospitals and clinics. E.g.:

MedlinePlus - Health Information from the National Library of Medicine

Mayo Clinic


==

In regard to getting an amplifier or very inexpensive hearing aid off the web --

I don't know if that would be a good idea or not, although I certainly understand the temptation.

You want to be sure that you don't get too much amplification because you want to keep the hearing you have.

You also want the hearing aid's gain to be appropriate for your loss. If you don't -- your HA can be very uncomfortable.

That is why it's better to get your hearing aids through an audi, and preferably through an audi that isn't lazy and will do the entire battery of tests that they are suppose to do.

Do you think its likely that you will get a job soon? If you can't get HAs through the Starkey's foundation or from the Lions Club, I wonder if you should try to get a pair with the Care Credit card. If you can pay off your bill in the agreed amount of time -- you won't owe any interest. If you can't -- you will owe a ridicously high amount of interest. If that could possibly happen, well quite frankly its very difficult to recommend going into debt that is very difficult to pay off.

I do hope others will start posting their ideas soon.

If there was such a thing as an amplifier that only gave you 10 - 20 dbs of gain -- that might be safe for your degree of loss as you described it for a short term solution. I think it would be difficult to verify that was all the amount of gain you were getting and you wouldn't want to jeopardize what hearing you have left.

==

Hearing loss cause --

The reason I asked if your family also had hearing loss was becasue you said you thought you had it from living near an airport. But if that was the case, probably other people in your family (and neighborhood) would have a hearing loss also. Of course genetics can also make one more predisposed to a loss. Basically its not always easy to know why one has a hearing loss unless one has a conclusive diagnostic test. (Sometimes people get genetic tests.) Which reminds me, don't forget to ask the ENT or audi where your hearing loss is located per your audiogram: middle ear, inner ear or both.

--

I've read of about 4 different ways people manage their own ear wax -- but again if your ear drum is perforated its not a good idea.

I don't think most doctors will give you a general OK to use those methods because if you do have a hole in your ear drum, you will be making your problem worse and not better.

Just because you didn't have a hole in your ear drum in the past doesn't mean that you wouldn't have a hole in your ear drum in the future.

Personally I don't know that I would risk it, but if you're interested I'll see if I can find a thread in a forum about that topic.
 
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