How do you deal with your hearing loss?

C-NICE

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I was told a short while ago that eventually I will probably go completely deaf sometime in the future. It has been on my mind constantly: Without getting to personal how did some of you who lost your hearing in adulthood handle that impending event? I'm just asking because my wife who is hearing (very supportive angel) I'm driving a bit batty with all this.
 
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C-Nice,
I think everyone deals with it differently. I know that I am having a hard time with it as well. Especially as my hearing gets worse. You are very lucky to have someone who loves and cares about you around. I seem to drive everyone crazy as well. Whether its having the TV way too loud, talking really loud or not hearing everything correctly. People around me don't seem to understand that while they are frustrated I am even more frustrated. They also say things that hurt my feelings after awhile. Everyone in my family has said "Turn your hearing aids up" a number of times if I don't hear something and it gets really old quickly. If any of them ever listened to me they would know I can't adjust the volume on them. I snapped at my family the other day when I heard "turn your hearing aids up" for like the 3rd time in an hour. My every day life has changed and my hearing isn't even all the way gone. My friends and family are having a hard time adjusting to the fact that I can't hear like I used to.
I try to get them ready for what is going to happen but they don't take it too seriously, its all I think about some days. I have Menieres and some days are worse than others. Hang in there, you are in the right place if you need support :)
 
After I lost my hearing in 1995, I found it helpful to join a support group. This allowed me to express my frustration at the daily challenges caused by my inability to hear as well as to learn strategies to help make communication easier. It also helped me see how others with hearing loss were coping with their own deafness. Even now, I find forums like alldeaf to be an excellent source of support as well since many of us have "been there, done that" and can understand what it's like to live with hearing loss/deafness.
 
I was born profoundly deaf and have no idea what I am missing. I can't miss what I never heard, although I sometimes wonder what high(er) frequency sounds are like, as well as what it's like to hear faint sounds. My speech perception is poor so I relay on reading lips. My HAs are mostly for environmental sounds. I can hear voices but don't understand what they are staying unless I read lips.
 
When I lost my hearing, my ex wife had more reservations and problems with it than she ever let on. I guess I never got the full truth from her how it made her feel with regards in changing communication methods or appropriate one on one conversations.

As for myself- I think I was in a little denial for a while and was very stubborn about wanting or getting assistance. When I finally matured a little bit, I decide I wanted to try HA to see if they can help. Work is much more less worrisome and I feel I am very much more successful than when I tried to do things and refuse help.
 
C-NICE, think of it as a grieving process. After all, you are mourning the "dying or death" of your hearing. We have all gone through it, in one way or another. It is hard when you have something you take for granted and *poof* in very little time at all it is gone. I started losing mine in 2006 in just one ear. I actually handled that fine, in retrospect, because most Meniere's patients don't lose all their hearing in both ears, or so I was told. Little did I know at the time, I didn't fall into that category. :(
I had my "good ear" and even though it had lost a bit, I had a hearing aid that worked great and it didn't seem to affect my life. January of 2008 is when it really hit home. I went to bed one night and woke up with what I thought was a simple head cold. True, I had the head cold, but the hearing didn't come back. That's when it hit. Having to get a stronger aid, and finding it didn't help as well as the first one had less than a year before. The denial, the anger, the depression, it all hit and was very hard to control. Like candybrowneyes says, people just don't get it and most don't know how to deal with it themselves. For some, you become a "non-person" while others show their true friendship/compassion. And yet, this all totally normal, and human, and I know it happens with everyone... not matter what they are losing (health, way of life, etc.) and the only thing you can do is allow your self the time needed to grieve and come to understand that you are still you, and life goes on, and you can still enjoy it to the fullest. The key is not to wallow in it. Yes, if you feel the need for a "pity party" go for it, you earned it. But that party, as with all parties, has an ending time and you need to get back to living normally. If you need a support group, or counseling, go for it as it can only help you deal. The same applies to your wife. She has to adjust to a new way of life as well, and she will get frustrated when you talk too loud, even though she knows you can't help it. She will have trouble remembering to look at you when she speaks, etc. But, she will, like my husband did, learn a different way of doing things. Just give yourselves both time...find things fun to do together, hobbies are great to get your mind off things, etc.
 
For the most part I have dealt with it the best i can. it's not like I have a choice in the matter. There are times usually in a group situation where I feel very isolated as I cannot participate or understand what is going on. I have a very understanding wife. We have been married for 16 years and when we got married, my hearing was within normal ranges. She is very aware of situations we are in and makes a real effort to put us in situations that will make it easier for me to hear as far as seating and lighting ect. I am very lucky. I am however finding myself in situations at work that are getting more and more difficult to hear. I have more of a fear that I might lose my job or certain responsibilities will be taken away from me because of my loss. Because of this I have not let on that i can't hear in certain situations, and have even said I was fine when asked even though I was missing a lot. Everybody at work know the extent of my hearing loss and have been very supportive and accomodating I guess i am just creating the fear in my head and that it is really unfounded.
 
When I was 3 years old, I lost my hearing to Auto-Immune hearing loss. And I was on steriods to try to prevent my hearing to go bad. Unfortunatly I lost my left hearing completely but my right ear was about 50% deaf. I can hear very little thru my right ear but only if it's a very loud noise. But I remember asking my mom if I would ever get my hearing back again. My mom replied to me with a sad face and said: "no sweetie, your hearing won't come back. I'm sorry." But I kind of knew that it wouldn't come back.

But sometimes I would be angry about myself being deaf because of the things that i'm not able to do or hear. Sometimes I'm happy with being deaf with the advantages that it gave us; for example: Your younger sister or brother screaming and you can turn off your ears, your dogs barking,etc. Like today I was fustrated with my hearing aid, because I could hear very little through my hearing aid. I don't know if its my HA or it's my right ear. I have a cochlear implant on my left and my hearing aid on my right.

but if you're ever fustrated with your deafness. you could always come to AD for advice. We're here to help!!!!:D
 
Born deaf so I don't know what it is like to be able to hear but I was mainstreamed among hearing kids all of my life. I was treated like person non-grata for most of my life and never knew what it was like to fully fit it until I started learning ASL and got involved with the Deaf community. It helped me to accept my deafness by being around others who shared the same experiences. I grew up trying to be "hearing" since I identified myself like my hearing peers but always fell short and blamed myself. Now, I don't have those issues anymore because I know I do my best to communicate with others and if they aren't willing to meet me halfway or be as understanding, then I know that they are the ones with the issues, not me. The burden is no longer there and it is great.

Hope u will get there. Hang in there!
 
Although I've never known what's it like to be born with normal hearing and then to lose it in adulthood, I can relate to some of the OP's problems.

Sometimes if I don't understand what my parents are saying to me (due to background noises) they will ask me if I'm wearing my implant. Yes, I am wearing it.

Sometimes my parents won't even write me a note when I'm not wearing my implants; this was when I was in a great deal of pain and didn't want to walk very far to get my implants. My mother got mad and refused to write me a note till I pointed out that I could just refuse to use my voice and just mouth words to her.

A lot of times hearing families won't be supportive when it comes to your communication needs and that's too bad. Though I was born deaf, I know where the op is coming from in some ways.
 
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