Hello from the "Gray Zone"

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Hey everyone,
I'm a hard-of-hearing person who is looking for resources and support as I continue to lose my hearing (my loss is progressive). I'm currently enrolled in an ASL class, and am learning SO much about Deaf culture that I never knew. I'm learning ASL mainly so that I can communicate with people of all hearing levels, as well as for my own mode of communication as my hearing loss continues to progress.

Anyway, I feel like I'm in this "gray zone" - I'm not Deaf, but I'm not totally hearing, either. I function quite well in spite of my hearing loss, and I speak clearly (albeit with volume issues) but it definitely has its moments. It's maddening, frustrating, depressing, and - at times - funny.

I need help with finding resources. I also am wondering how you go about being "officially" recognized as a HOH/deaf person. I know this is going to sound like I'm being greedy, but I'm not....however, like most everyone, I'm not made of money. I'm in school and there are scholarships and subsidies that are available to deaf and hoh folks, and I'm wondering how one goes about becoming "officially" declared as such. I mean, yeah, my audiologist has it all on file, but do I have to submit that to the state to be recognized as hoh? Obviously, anyone can *say* they're one thing, but I would imagine it has to be documented somewhere. I also get hassled at work sometimes, and people accuse me of "faking it" and ignoring them, but come on - I'll be standing six inches from a timer and someone will walk from 20 feet away to turn it off because it was driving them nuts, and I have NEVER heard what one of them sounds like. Completely out of my decibel and pitch range.

I don't wear hearing aids for a variety of reasons (mainly expense and the fact that they won't really help anyway, since volume isn't my issue so much as pitch and clarity), and my loss is not yet severe enough to gain approval for implants (if I were to even decide to go that route).

I've never really dealt with any of this before. Please forgive me if my questions are stupid, but I really don't know what the heck I'm doing here. For years I've just sort of accepted it, but now I'm learning that it's okay for me to stand up and be recognized as a hard-of-hearing person and to stop hiding behind pretending to know what's going on.

Thanks in advance for all the help you might be able to offer. I'm excited to have found this group!
 
Welcome to alldeaf.

You will find some hard of hearing in the same shoes as you are.

Try hearing aids you might be surprised how well they work.

ASL classes is an excellent start.
 
My audiologist pretty much told me that hearing aids would be a waste of money, because my hearing loss is so much a clarity issue that amplifying sound would only increase the distortion. I mean, "straw" and "sauce" are gonna sound the same whether it's at 90 db or 200...and in fact I've noticed even when I try turning TV or radio up louder to try and hear better it makes it even worse. I'd hate to spend a couple thousand dollars just to keep them in a drawer because they don't work. :-(
 
Have you gotten a second opinion?

There are grants for hearing aids.

I would suggest you see a ear nose throat doctor (ENT). To find out if you have not already.

If so ... Like I said before ASL classes is an excellent start.

If you don't mind me asking your age and/or cause of your hearing loss?
 
I'm 37. Cause has never been determined. And yes, I've seen two ENT's and three audiologists in the last 10 years, and they have all said the same thing. As for the cause, they scheduled me for an MRI to see if they could figure anything out, but I didn't go through with it.
 
If they don't know the cause the best thing is to follow what the ENT says.

Wish you luck and again I welcome you to AD.
 
Welcome to AllDeaf. It isn't easy to get people to know you are Hoh without hearing aids. They all just assume you are faking it. It went through it for 37 years and at 45 I am now totally deaf. My speech is very clear due to having HA's for so long and a mother who was determined that I speak clearly and insisted I take diction classes. People still think I am faking it. At church I always have this blank stare on my face since I can't hear and one of the Pastors I totally can't read his lips. They give me a copy of the sermon and all songs are on a projection screen so I can follow along.

I am trying to learn ASL and can't afford any college classes, but I am learning from the computer, books and a friend. It's not easy, but I am getting there. I am getting a lot on the deaf culture from AD. One thing I do know, is that once I learn the ASL and am pretty good at it, I will still have problems communicating with people since they don't know ASL.
 
Welcome to AllDeaf. You will find a lot of information here to help you. Good luck.:wave:
 
:welcome: to AllDeaf forum. I hope you enjoy reading and posting all the threads here. Have fun with us. See you around. :thumb:
 
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