Did you go to your family doctor and describe to him your problem so that he can refer you to a more specific specialist?
I am sure there has to be an answer somewhere, so don't give up. Sometimes the first coulpe of specialists don't know anything about it.
You should also keep a log on what happens to you, so that you can refer on that to any specialists you meet.
Have you tried maybe cutting out some time out of your daily routines if at all possible to help your brain relax until you search for an answer?
Enlist another family member to help you search for answers.
