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  1. L

    Trying to get accurate diagnosis for my son

    My thoughts exactly. Whatever the cause of the speech delay, the ASL is working, so I'm sticking with that. Right now, my goal is getting where he can communicate his needs, wants, etc. to the world. This forum is really great support. With the "professional" world pushing at me in all the wrong...
  2. L

    Trying to get accurate diagnosis for my son

    Yeah, no way the public schools are getting hold of him! My plan is to continue our at home ASL classes until we can get to a deaf school. That is, of course, if his new hearing tests show what I think they will show. The SLP wants to send me to the same Dr. that did the original ABR that I have...
  3. L

    Trying to get accurate diagnosis for my son

    I looked it up. Wow! That is a big plus in Texas' favor. Thanks!
  4. L

    Trying to get accurate diagnosis for my son

    Good to know! What program is that?
  5. L

    Trying to get accurate diagnosis for my son

    Well, my son had his eval today, and I count it as a possible victory. I won't hear the official report until 2/27, but the SLP told me she was going to say that she saw no signs of autism, and that he was exhibiting signs of having a more severe hearing loss than previously suspected, and that...
  6. L

    Trying to get accurate diagnosis for my son

    I am thinking that Texas would be the best, since it is right "next door" to us. Also, Texas is good because they have a state program that is really easy for people with BA degrees in other fields (mine is English Lit)to get teaching certificates. I have a long range plan of getting serious...
  7. L

    Trying to get accurate diagnosis for my son

    I had actually contacted St. Rita's back in June. My husband was about to get transferred to Cincinnati in August (unfortunately, they laid him off in July and we are still stuck in Louisiana). Even back then, I knew what my son needed. I just wish I could get a professional to sign off on it so...
  8. L

    Trying to get accurate diagnosis for my son

    Yeah, I was looking around today at schools around the country, assuming they will come to a conclusion that it is his hearing and that deaf education would be the right path. (I'm already convinced, but I can't get him in without a medical person saying he needs it.) I've heard the ones in the...
  9. L

    Trying to get accurate diagnosis for my son

    It IS very discouraging how the medical community acts when you have a child that needs special attention, but a very small wallet. You hear all the claims that the US has the best health care - but what good does it do if you can't afford it? I'm not even sure that claim is true - but that's...
  10. L

    Trying to get accurate diagnosis for my son

    The 18p- is definitely an avenue to look into. His teeth came in very late, which I didn't connect to any of this until I read some of the characteristics of 18p-. He doesn't have the small stature, by any means. He is very tall and well built. Physically, he's very well proportioned. As for...
  11. L

    Trying to get accurate diagnosis for my son

    Wow, even in Boston they treat people like that? Unbelievable!! Yeah, the only DSM ASD criteria he has is the lack of speech. He does have trouble sleeping, which I understand is common with ASD, but all of my children have been poor sleepers too. Oh, I had never seen the abbreviation 18p-. He...
  12. L

    Trying to get accurate diagnosis for my son

    Sadly, Loyola is about 9 hours from us. We are about an hour north of Shreveport. Currently, I'm dealing with LSU medical center in Shreveport. The meeting yesterday went fairly well, although the panel I met with had four developmental psych people, one Speech Therapist and NO audiologist. They...
  13. L

    Trying to get accurate diagnosis for my son

    I guess you're right. I have the diagnosis, I guess I'm really just wondering why the professionals around here are ignoring it. Out of one side of their mouths they say he has a hearing loss, but then say it shouldn't matter. I'm trying to think if he has any other issues. He had a dilated...
  14. L

    Trying to get accurate diagnosis for my son

    Thanks to everyone for the support. I can't tell you how it helps me. There are times when I think I'm insane for not letting go of the hearing issue, but then I know somehow that I can't let it go. I'll try to answer all of the questions. Bottesini - I hope you are right - the DSM criteria...
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    Trying to get accurate diagnosis for my son

    Thanks everyone! Your support is really helping. I've felt very alone in this journey, and the medical professionals are making it worse - making me feel like I'm in some sort of denial or delusion. Bottesini - I hope you are right that the new DSM toughens up the ASD criteria. It has...
  16. L

    Trying to get accurate diagnosis for my son

    Hi: I have four children, the youngest of which is 3 1/2 with sever speech delay. Briefly, he had trouble passing his newborn screening, but after many attempts the technician said he did pass. During his first year of life, he had over eight ear infections, several burst eardrums. After moving...
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