Menieres

candybrowneyes

candybrowneyes

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This thread will be for anyone who wants to discuss Menieres, who has it, wants to know about it, take out your frustrations about it.

I personally know what this disease does as I was diagnosed in 2008 with it. I was one of the lucky people who was diagnosed bilaterally =/

This thread will be a sticky.

Post as you wish.
 
I too was a lucky one that got it bilateral. I was told many times by my ENT that I would never get it in my other ear. Well last Aug I went bilateral. My ENT said he had never seen someone so young get it in both ears, so I was sent to see a specialist 2 hours away that I now see every month.
 
I have "enjoyed" Meniere's for over 10 years. Finally diagnosed in 2002 after a couple of years of hearing changes. My "version" has less vertigo than typical, but the hearing loss and fullness are unpleasant enough. I am not jealous of those that have the vertigo.
I take Dyazide and watch my sodium intake. I also quit ciggies in 2002. I find that stress is a trigger. I also get episodes when I have a hearing test. Imagine that.
 
Yeah, Stress is a trigger for me as well. When I am all emotional it seems as though it is definitely worse. Dyazide is practically the same as Maxide which is what my doctor has changed my script too. But now I also take promethazine for nausea and meclizine for vertigo. I also take an anti inflammatory called Naproxen.
 
candybrowneyes said:
Yeah, Stress is a trigger for me as well. When I am all emotional it seems as though it is definitely worse. Dyazide is practically the same as Maxide which is what my doctor has changed my script too. But now I also take promethazine for nausea and meclizine for vertigo. I also take an anti inflammatory called Naproxen.
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Do you get episodes when you have your hearing tested? It is always bad news for me: "You have lost this much; you will keep losing at an unknown rate. Learn ASL" kind of thing. For some reason, this almost always gives me about 2-3 weeks of the roaring/ringing with drastic hearing loss.
 
I have never had an attack during a hearing test. That would be horrible, seeing is how I get them at least once a month. They told me the same thing. " I don't know how much hearing you will lose, but you should learn ASL." They have me on Ativan and Valium. I also take a diuretic Triamterene and hudrochlorothiazide, which is maxzide and Dyzide.
 
TiaMarie said:
I have never had an attack during a hearing test. That would be horrible, seeing is how I get them at least once a month. They told me the same thing. " I don't know how much hearing you will lose, but you should learn ASL." They have me on Ativan and Valium. I also take a diuretic Triamterene and hudrochlorothiazide, which is maxzide and Dyzide.
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It is not a full-on episode until afterwards. I can feel it beginning as I sit in the booth, hearing words so loud they hurt my head, but no idea what the word is. It is a slow anger in me, I think, building as the test progresses. In my line of work, I am often tested while on the job, and the testers are usually fascinated by someone with my loss; testing me over and over, then telling me to wear plugs. Grrrrr.
 
I hate when I get tested and it's a male that is doing the testing. Come on, I have mostly low range hearing loss. They are just setting me up for failure. lol
 
I have it and I think promoting a healthy lifestyle has prevented me from getting dizzy. I usually don't eat processed foods and I use the Eating for Life cookbook as a guide. I also don't cook with non-stick pans as they have Teflon coating. Because of this, I think, I've not had an attack in years.

It's a tough thing to go through, but hang in there, it's not your whole life, just a part of it.
 
I do the same thing. I only shop the outer sides of the store, and everything I make from scratch, so I know how much sodium is in it. I had some really good years with no attacks at all. Then I went bilateral and it's starting all over again. Crap!
 
TiaMarie said:
I do the same thing. I only shop the outer sides of the store, and everything I make from scratch, so I know how much sodium is in it. I had some really good years with no attacks at all. Then I went bilateral and it's starting all over again. Crap!
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That's pretty impressive. I don't necessarily think it is all sodium related as I've tried different things. However, I haven't ruled out that the processed foods which use sodium has an affect. I eat more fruits and vegetables today, I had watermelon as a snack this afternoon, I try to keep everything low fat.

I'm sorry you are having issues with it, but I do believe you'll get back to normal in time.
 
Do you drink coffee or alchohol? And, what about exercise?

I don't drink coffee, but I do drink alcohol. I also exercise 5 times a week.
 
Well it seems like I get the attacks during that time of the month more. I changed my diet up and my daily symptoms have been so much better as well as exercising!

Tia I was wondering what your loss is? I have a guy for an audi too but that doesnt really have anything to do with my test scores... the beeps need to be changed up a bit though because of the tinnitus.

saywhatkid, yes I just get nervous for the tests, but im not sure its ever caused an attack
 
It's not really the beeps, its more when he says words and I have to repeat them and he lowers the volume after each word.

I will have to find my test scores and I will most them, if I can read it correctly. lol
 
It's not really the beeps, its more when he says words and I have to repeat them and he lowers the volume after each word.

I will have to find my test scores and I will most them, if I can read it correctly. lol
 
highly more cocern your issues symption terrible on your suffer pain because your have probelm disease how long your health problem on menierse
 
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