Response to deafdyke: CIs vs. HAs/CI candidacy

Hear Again

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When I tried submitting this within the original thread where this topic was being discussed, I received an error saying that my message was too short to be posted. Therefore, I am posting it below:

Well, according to Auditory-Verbal Inc. only about 20% of deaf kids can't benifit from hearing aids.

Yes, but I was referring to children *and* adults.

If it's totally 100% clear that a deaf kid does not benifit from hearing aids....like ANY type of hearing aids, I do think that implantation should be a clear shot for that population.

Agreed.

When I voice doubts about implantation, I am simply voicing doubts about the population for whom implantation is really kind of ambigious. Like for example I know of someone who can hear 80% with hearing aids, who has been told he's a possible canidate!

I highly doubt a surgeon or audi at a qualified CI center would tell a HA user with 80% discrimination that they are a possible candidate for a CI. Now if this person was given this information by a HA audi or ENT *that* I believe. Unfortunately, 99% of ENTs and HA audis are unfamiliar with the qualifications of CI candidacy. Even my own HA audi didn't know if I would be accepted as a candidate even though I had a 90+ dB loss with no measureable hearing aided or unaided at 1000 Hz and above.

I know of kids who could hear about 65% with aids (10% without) who were still eligable to be implanted.

Some CI centers will accept children or adults with speech discrimination scores slightly above 60%. I'd be willing to bet that the children you mentioned are functioning considerably better with CIs. In fact, I know of several cases where a child had 60% discrimination with HAs that rose to 95-100% with a CI. To me, that's a significant improvement and demonstrates that even if a child has 60% discrimination with HAs, they have the potential to understand 30-40% more with a CI.

However if someone has a very poor word response, then YES........they should get implanted.....I'm NOT anti-low response implantation.

What do you mean by "anti-low response implantation?"

I definitly think that ambigious canidates (like those who can hear around 45% and up with hearing aids) should go through at least five "trials" of hearing aids, just to be absolutly 100% sure that they've exhausted all possible routes.

FIVE trials of HAs? Are you kidding? When I was evaluated for a CI, I was already wearing the most powerful HAs available on the market and was tested using my HAs *and* Comtek FM system with direct audio input. Even with that set up, I only achieved 22% speech discrimination aided (right ear only). Many CI users I know were also wearing the most current up-to-date HAs at the time of their evaluation.

It does seem in some quarters that the CI has been almost seen as a TrEnDy new "gotta have" gadget. Not saying that ANYONE here is like that. But there do seem to be people out there who are kind of "trend whore" about the CI.

Agreed.

I am NOT criticizing ANYONE who opts for CI who has a poor response to hearing aids........(poor response is about <45% of speech) I'm just saying that maybe it might be better for the ambigious canidates to be required to first experiment with a variety of hearing aids, including non traditionals. If they don't respond well, then YES! The ambigies SHOULD be implanted..........but I just think that hearing response is just so indivdual, that it's worth it for the ambigious canidates to really experiment, and make sure that a simple switch of hearing aids/hardware/ change of earmold/tubing might not increase the percentage of words that they hear.

Agreed -- especially in the 1-2% of cases where CI candidates wore ITE aids during the time of their CI evaluation instead of being fitted with BTEs and an FM system.

Hear Again, I have never said that there's a significent population for whom the CI does not work. Just have said that the benifit from CI has been VERY VERY variable that's all. Some people are functionally hoh, but others only get enviromental noise benifit. And of course, every other hearing status in between.

You may not have made this claim, but 95% of the messages you post to AD come across as if you are discouraging, interrogating and questioning adults and parents who wish to obtain a CI for themselves or their child.

As for CI users who are only able to hear environmental sounds, again, they are no worse off than they were before getting a CI (provided they had no speech discrimination pre-CI with HAs). When you refer to CI users who can *only* hear environmental sounds, some of your posts seem to come across as if you are minimizing or discounting this as being a negative aspect of having a CI. Remember, success with a CI varies from person to person. Being able to hear only environmental sounds (your words) can be just as important (if not more) than being able to understand speech.
 
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Good post by an CIs user :applause:
real ideas coming from an experienced former HAs user and she truly knows the difference herself :)
 
I highly doubt a surgeon or audi at a qualified CI center would tell a HA user with 80% discrimination that they are a possible candidate for a CI. Now if this person was given this information by a HA audi or ENT *that* I believe. Unfortunately, 99% of ENTs and HA audis are unfamiliar with the qualifications of CI candidacy.

They also may be doing different tests. When the HA audi I work with does speech recognition testing, I score 80%; but she's doing a closed set, and after 15+ years, I know those words cold (hotdog, cowboy, airplane, baseball, popcorn, ice cream, etc). Do it with an open set of words, like the CI audi, and put in even 5-10 dB of noise (over the signal threshold), and my score drops to 30%.

So saying that a given person has N% speech discrimination is something of an ambiguous statement.
 
They also may be doing different tests. When the HA audi I work with does speech recognition testing, I score 80%; but she's doing a closed set, and after 15+ years, I know those words cold (hotdog, cowboy, airplane, baseball, popcorn, ice cream, etc). Do it with an open set of words, like the CI audi, and put in even 5-10 dB of noise (over the signal threshold), and my score drops to 30%.

So saying that a given person has N% speech discrimination is something of an ambiguous statement.

That's right . I may get good speech recognition results inside 'ideal' room without noise but the real world is not a quiet room so I often get low or moderate speech recognition scores in real life conversations.
 
They also may be doing different tests. When the HA audi I work with does speech recognition testing, I score 80%; but she's doing a closed set, and after 15+ years, I know those words cold (hotdog, cowboy, airplane, baseball, popcorn, ice cream, etc). Do it with an open set of words, like the CI audi, and put in even 5-10 dB of noise (over the signal threshold), and my score drops to 30%.

So saying that a given person has N% speech discrimination is something of an ambiguous statement.

Good point!

I also think the end result depends upon the way in which speech discrimination is tested as well as the extent of hearing tests that are performed.

For example, when my former HA audi tested me, she read words out loud (as opposed to using a recording).
When I was evaluated for my CIs, speech discrimination tests consisted of listening to a pre-recorded CD of a male voice reading single words, sentences in quiet and sentences in noise.

When I was given hearing and speech discrimination tests by my HA audi, the pure tone and single word testing only took 15-20 minutes maximum. When I was evaluated for my CIs, audiological testing took 2.5-3 hours.

As for the closed set words you mentioned, I'm also very familiar with them (I've worn HAs for 20+ years), but my speech discrimination was so poor that I couldn't distinguish one from another even though I could recite them all by memory. In fact, my percentage for single word testing during both of my CI evaluations was 0%. Sentence testing in noise was also 0%, but sentence testing in quiet was 22% (right ear).
 
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Hear Again, On the other hand, I do think that in some cases experimentation with different types of aids might produce results that are just as good as implantion.
Why not shorten the ha trial time for the ambigious cases? Like have them go through formal in the booth HINT testing with a variety of different kinds of aids, and THEN require the hearing aid with the best response to be used IRL for at least two weeks. If there was a formal process like that for ambigious canidates, I'd be VERY pro CI. :eek3: I realize in the flat out qualified pop, most people HAVE experimented for years and years with different types of aids.
I am definitly pro-implantation with low response with aids, (<45%) implantation. Nothing wrong with that......
It's been a few years since I heard from the guy who could hear 80% who was looking into implantation, but I remember that he was saying that he was eligable b/c he couldn't hear perfectly in all situtions. This was a person who was the president of his SHHH! Not just a typical layman.
Sorry about seeming so militant. But, if I ask a parent or someone about their hearing history, I'm not doing so with the intention of being anti-CI. I think the CI ROCKS!!!!!!!!!!!!!! It's basicly the "new digital aid"........just trying to make sure that people aren't falling for the hype, the way that a lot of people did with digitals that's all. I'm going to try to not seem so miliatant. But, if I do ask someone about their loss, or suggest alternatives, I really do not want people acting like I'm an extreme militant. Who knows? Maybe someone will find that an alternative works really well for them!
 
DD,

People could try a bunch of hearing aids but the reality is there is only so much a HAs can do. Amplification ,no matter how much may or may not help when the hearing gets to a certain point. This is due the the damaged cochlea. You can amplify the sound all you want but if the cochlea is damaged you are going to get distortion or nothing at all from a HA because the brain will not get the proper signal.

I know this from experience. I am trying some very strong hearing aids and my worst ear with 0% speech recognition is not being helped much. The sound is either too soft or staticky in my worst ear. I asked my audi about this and she said I am trying the best aid on the market for my loss and if it does not work nothing will. BTW, I am on a waiting list for trying a FM system and I will continue to work with these HAs and probably at least one other type.

As far as Transpostion HAs those might work for someone who has a high frequency loss and good hearing in the low frequency. It is not an option for everyone.

Finally, the reason the criteria for CI candidacy was relaxed was that it was found that there were people with profound losses with CIs that were hearing better than those with Severe -profound losses with HAs. Any CI center has to follow the guideline are they would be in trouble. Insurance companies also expect the FDA guideline to be followed.

Hear Again thanks for the GREAT posts, keep telling it like it is!!!!!!
 
set2, I do understand that there are limitations as to what a hearing aid can do. However, it's a fact that response to things like hearing aids is VERY indivdual. It's also a fact that the CI centers don't really have a solid front as to who can benifit from implantation if the person is an ambigious canidate.I just think that they should be a little stricter and have ambigious canidates experiment a little more. You can almost "shop" for a CI center to implant you if you're an ambigous canidate. That's really what kinda bothers me. That you can "shop" around for an implant if you're ambigious.
 
set2, I do understand that there are limitations as to what a hearing aid can do. However, it's a fact that response to things like hearing aids is VERY indivdual. It's also a fact that the CI centers don't really have a solid front as to who can benifit from implantation if the person is an ambigious canidate.I just think that they should be a little stricter and have ambigious canidates experiment a little more. You can almost "shop" for a CI center to implant you if you're an ambigous canidate. That's really what kinda bothers me. That you can "shop" around for an implant if you're ambigious.

Ambiguity would work both ways though wouldn't it? As you say response to hearing aids is very individual and this must correspondingly mean that there are going to be those individuals who would fall outside of the stricter criteria that you desire who would benefit considerably more from CIs than hearing aids in real life even though they might score slightly more than 45% in a sound booth.

I don't know why this subject merits all the effort that you have put into it. Everyone knows that there are the odd few who probably should have stuck with hearing aids but the vast majority of situations to me appear to be deserving and the majority of audiologists/CI centres take care in selecting candidates and do appear to experiment with hearing aids. CIs are not unique in this regard, you'll find the same slip through the net cases for whatever situation you are looking at.
 
All the debating in this discussion is highly subjective and anecdotal. Why not make it more quantitative and include numbers?

Scholar.google.com is our friend.

For one starting point, Cheng, et al. (2000) do a cost-utility study for cochlear implantation. They calculate the total cost to the deaf implantee and tell you whether or not the implantee loses or gains over a lifetime. Go forth and google. ;)
 
Posted on behalf of HearAgain...

Hear Again, On the other hand, I do think that in some cases experimentation with different types of aids might produce results that are just as good as implantion.

Agreed, but since *most* (not all) people with severe-profound or profound hearing loss are already wearing the strongest HAs available, this may not be necessary.

Why not shorten the ha trial time for the ambigious cases? Like have them go through formal in the booth HINT testing with a variety of different kinds of aids, and THEN require the hearing aid with the best response to be used IRL for at least two weeks. If there was a formal process like that for ambigious canidates, I'd be VERY pro CI.

That is already being done for people who are not wearing the most up-to-date hearing aids. I don't agree that HA trials should be shortened for anyone except in cases where it is clear that a person receives no benefit from HAs. If one person is required to have a 6 month trial with HAs, the same should be expected for ALL.

As for "ambiguous" vs. "non-ambiguous" cases, why separate people into categories? A CI candidate is a CI candidate -- period.


It's been a few years since I heard from the guy who could hear 80% who was looking into implantation, but I remember that he was saying that he was eligable b/c he couldn't hear perfectly in all situtions. This was a person who was the president of his SHHH! Not just a typical layman.

I think I know who you are talking about. If it's the same person I'm thinking of, he chose to be evaluated for a CI but was denied candidacy based on his 80% speech discrimination.

If the person you mentioned knew as much about hearing loss as you claim he does, why was he considering a CI in the first place if he could understand 80% of speech?


Sorry about seeming so militant. But, if I ask a parent or someone about their hearing history, I'm not doing so with the intention of being anti-CI. I think the CI ROCKS!!!!!!!!!!!!!! It's basicly the "new digital aid"........just trying to make sure that people aren't falling for the hype, the way that a lot of people did with digitals that's all.

When adults or parents look into a CI, many of them don't rush into the decision without doing alot of research beforehand. With the potential that a person (or child) may lose all residual hearing, the decision to have a CI isn't taken lightly by adults, parents, the CI surgeon or audi.

I'm going to try to not seem so miliatant. But, if I do ask someone about their loss, or suggest alternatives, I really do not want people acting like I'm an extreme militant.

There is a difference between asking someone about their hearing history vs. questioning their decision (in an interrogating manner) to have a CI. If an adult or parent is considering a CI, chances are likely that they've exhausted other alternatives. An adult or parent who has already chosen the CI route does not need to be encouraged to explore other avenues. Their decision has already been made and suggesting that they consider other alternatives most likely will not change their opinion.

Who knows? Maybe someone will find that an alternative works really well for them!

It is equally possible that an adult or parent will discover how much they or their child have been missing with HAs after receiving a CI.


__________________
Hear Again

Left ear - Nucleus 24 Contour Advance with Freedom BTE
Implanted: 12/22/04 Activated: 1/18/05

Right ear - Nucleus Freedom
Implanted: 2/1/06 Activated: 3/1/06

Deafblind/Postlingual
 
You can almost "shop" for a CI center to implant you if you're an ambigous canidate. That's really what kinda bothers me. That you can "shop" around for an implant if you're ambigious.

In the case of less polarizing medical treatments, they call this "getting a second opinion", and there are perfectly valid reasons for it - it's not just manipulation or gaming the system as you seem to imply.
 
..........It's also a fact that the CI centers don't really have a solid front as to who can benifit from implantation if the person is an ambigious canidate.I just think that they should be a little stricter and have ambigious canidates experiment a little more. You can almost "shop" for a CI center to implant you if you're an ambigous canidate. That's really what kinda bothers me. That you can "shop" around for an implant if you're ambigious.
Well, someone who is really going to shop for CI will be a highly motivated CI-user. I wish that person all the best. Go get it if you can afford it....
Beats a boob-job, liposuction etc any time.

If someone has reasonalbly effect of a HA, and she wants to hear better with a CI, then she might not be covered by insurance, but might very well be willing to pay for it herself.
Now, that's a motivated person that will benefit probably a hell of a lot more than a d/Deaf person who is allmost automatically accepted but really only wants to "sniff" CI, and not really being motivated will stop using it after a year because it doesn't "work" (because due to the lack of self-motivation to learn...)

What I mean to say is that I would rather see motivated people be accepted for CI even though they cannot forfill the requirements, than unmotivated people that do fill the requirements.

There's nothing wrong with changing out a HA before you loose all your hearing..
 
All the debating in this discussion is highly subjective and anecdotal. Why not make it more quantitative and include numbers?

Scholar.google.com is our friend.

For one starting point, Cheng, et al. (2000) do a cost-utility study for cochlear implantation. They calculate the total cost to the deaf implantee and tell you whether or not the implantee loses or gains over a lifetime. Go forth and google. ;)

I don't like dealing with statistics (since I believe any study can be biased to reflect the conclusions a researcher wants it to), but I've actually researched this and found that CIs cost *less* money over the long run compared to HAs, interpreters and captionists. Since many CI users (particularly children who are implanted at a very early age) are able to function without the need for terps or captionists, this means less money is spent on accommodating a child who uses a CI compared to a D/deaf or hard of hearing child who uses a terp or captionist.

Additionally, while it is true that the costs related to CI mappings can be rather expensive ($200-$300/visit depending on CI center), this pales in comparison to the cost of programming, maintaining and repairing HAs which, in some cases, need to be replaced every 3-5 years (although there are exceptions -- I've had my Oticon 380Ps for 16 years) depending on how well they are taken care of by the person using them.
 
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Well, someone who is really going to shop for CI will be a highly motivated CI-user. I wish that person all the best. Go get it if you can afford it....
Beats a boob-job, liposuction etc any time.

If someone has reasonalbly effect of a HA, and she wants to hear better with a CI, then she might not be covered by insurance, but might very well be willing to pay for it herself.
Now, that's a motivated person that will benefit probably a hell of a lot more than a d/Deaf person who is allmost automatically accepted but really only wants to "sniff" CI, and not really being motivated will stop using it after a year because it doesn't "work" (because due to the lack of self-motivation to learn...)

What I mean to say is that I would rather see motivated people be accepted for CI even though they cannot forfill the requirements, than unmotivated people that do fill the requirements.

There's nothing wrong with changing out a HA before you loose all your hearing..

:gpost: Cloggy! :applause:
 
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