Family must sell home to fund implant for deaf daughter

Miss-Delectable

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Broward Times - Family must sell home to fund implant for deaf daughter

Denied insurance coverage for their deaf daughter, a Hollywood couple is selling their home either to qualify for coverage or to get the cash needed for a surgical implant to help their little girl enjoy the world of hearing.

Thanks to the Alliance for Families with Deaf Children, 2-year-old Erika Ramotar, her two sisters, and her parents have all been learning American Sign Language.

“We feel like we can talk to Erika now, she understands us,” said Erika’s mother, Shaida Ramotar, who reads to Erika every night now.

Despite the progress over the past six months, Erika could be hearing some sounds and developing speech skills with a cochlear implant, which converts speech and environmental sounds into electrical signals. The device sends these signals to the hearing nerve.

Cochlear implants allow individuals who are profoundly hearing impaired to receive sound.

Although the family, originally from Trinidad and Tobago, has medical coverage through the father’s employer, coverage was denied for Erika because of her pre-existing condition. Social Security said no. The family doesn’t qualify for state-sponsored Medicaid or KidCare assistance, either.

Shaida Ramotar says a Medicaid representative suggested selling her house to become eligible. The couple listed their home about a month ago. The house is listed for $500,000, and the couple hopes to net $75,000 cash from the sale.

But the market is so slow that it could be a long time before the house is sold, the family says, and Erika needs the device as soon as possible.

“I just want Erika to learn to hear and to speak and to have the privileges that we all have,” Shaida Ramotar said.

Meanwhile, AFDC, which serves over 350 South Florida families, is asking the public for donations to help buy the badly needed cochlear implant for Erika. The device and the surgery to install it range from $40,000 to $100,000, not including follow-up therapy.

“This is a sad day for the American dream of home ownership when a family must put their home up for sale in order to receive a badly needed medical treatment for their little girl,” AFDC Executive Director Jennifer Jones said. “Without the implant, Erika will never hear her mother’s voice, let alone develop a normal speech pattern. We are also investigating whether the insurance denial may be a violation of the Americans with Disabilities Act.”

Jones is urging kind-hearted individuals and companies to make checks payable to AFDC with a note that says, “for Erika” on the bottom left of the check.

Send donations to the Alliance for Families with Deaf Children, Erika’s Fund, 1350 E. Sunrise Blvd., Suite 105, Fort Lauderdale, FL 33304.

Donations are tax deductible.

Founded in 2001, AFDC is a 501(C)3 non-profit organization that helps families with deaf children overcome barriers to successful communication. The organization also helps deaf and hard-of-hearing children achieve their highest levels of academic, social and personal success.

On average, fewer than 10 percent of hearing parents are able to use sign language to communicate with their deaf child, and only 1 percent of families who come to AFDC can communicate with their children through American Sign Language.

AFDC’s mission is to see deaf and hard of hearing children succeed through providing families with resources, services, and support.

The organization relies entirely on grants and donations to provide these badly needed services to South Florida families.

To donate or for more information, please call AFDC at 954-370-1145 or visit AFDC: Alliance for Families with Deaf Children.
 
Wow! I am sorry to say this and I dont mean to offend anyone who believes in CIs, but the child can do fine without one if taught how and the family dont have to lose their house. I am just surprised that the need for CIs are that bad cuz there are many of us who grew up without CIs who do fine and have been able to develop good oral skills. I just see it as a waste of money but that's me.

Glad that they are learning ASL so she is not being deprived of a language while waiting for their house to be sold. Imagine if they didnt...that child would have huge problems so it was a relief to read that part.

Good luck to the family and I just feel sad that they have to sell their house for something like a CI which is not really a life-saving device. It is great for many people but that badly??? Interesting.
 
Wow! I am sorry to say this and I dont mean to offend anyone who believes in CIs, but the child can do fine without one if taught how and the family dont have to lose their house. I am just surprised that the need for CIs are that bad cuz there are many of us who grew up without CIs who do fine and have been able to develop good oral skills. I just see it as a waste of money but that's me.

Glad that they are learning ASL so she is not being deprived of a language while waiting for their house to be sold. Imagine if they didnt...that child would have huge problems so it was a relief to read that part.

Good luck to the family and I just feel sad that they have to sell their house for something like a CI which is not really a life-saving device. It is great for many people but that badly??? Interesting.

hehe, it wouldn't be enjoy to live in apt with bunch of latino, when location is in Hollywood, near to Miami.

I rather to own house over CI.
 
hehe, it wouldn't be enjoy to live in apt with bunch of latino, when location is in Hollywood, near to Miami.

I rather to own house over CI.

Right..too bad that the health insurance denied them coverage if they really want the CI that badly. Oh well.

Also, another concern I have is..what if the child doesnt benefit from the CI as much as they expected and they end up really disappointed not to mention the loss of their house? Just seems like a lot of money for something that could work or not. I think the insurance company should give them coverage for the surgery.
 
Right..too bad that the health insurance denied them coverage if they really want the CI that badly. Oh well.

Also, another concern I have is..what if the child doesnt benefit from the CI as much as they expected and they end up really disappointed not to mention the loss of their house? Just seems like a lot of money for something that could work or not. I think the insurance company should give them coverage for the surgery.

Oh well, that would be scary if child is goes to CI when not benefit then would be put them in risk, probably would be more diffcult to handle with CI, or even more diffcult to develop the languages, I wish that they need move on and think about future without deaf, lus Florida School for the Deaf can help her, same with her parent.

If she does got good benefit then insurance would be obviously to approve at most time.
 
Broward Times - Family must sell home to fund implant for deaf daughter

Denied insurance coverage for their deaf daughter, a Hollywood couple is selling their home either to qualify for coverage or to get the cash needed for a surgical implant to help their little girl enjoy the world of hearing.

Thanks to the Alliance for Families with Deaf Children, 2-year-old Erika Ramotar, her two sisters, and her parents have all been learning American Sign Language.

“We feel like we can talk to Erika now, she understands us,” said Erika’s mother, Shaida Ramotar, who reads to Erika every night now.

Despite the progress over the past six months, Erika could be hearing some sounds and developing speech skills with a cochlear implant, which converts speech and environmental sounds into electrical signals. The device sends these signals to the hearing nerve.

Cochlear implants allow individuals who are profoundly hearing impaired to receive sound.

Although the family, originally from Trinidad and Tobago, has medical coverage through the father’s employer, coverage was denied for Erika because of her pre-existing condition. Social Security said no. The family doesn’t qualify for state-sponsored Medicaid or KidCare assistance, either.

Shaida Ramotar says a Medicaid representative suggested selling her house to become eligible. The couple listed their home about a month ago. The house is listed for $500,000, and the couple hopes to net $75,000 cash from the sale.

But the market is so slow that it could be a long time before the house is sold, the family says, and Erika needs the device as soon as possible.

“I just want Erika to learn to hear and to speak and to have the privileges that we all have,” Shaida Ramotar said.

Meanwhile, AFDC, which serves over 350 South Florida families, is asking the public for donations to help buy the badly needed cochlear implant for Erika. The device and the surgery to install it range from $40,000 to $100,000, not including follow-up therapy.

“This is a sad day for the American dream of home ownership when a family must put their home up for sale in order to receive a badly needed medical treatment for their little girl,” AFDC Executive Director Jennifer Jones said. “Without the implant, Erika will never hear her mother’s voice, let alone develop a normal speech pattern. We are also investigating whether the insurance denial may be a violation of the Americans with Disabilities Act.”

Jones is urging kind-hearted individuals and companies to make checks payable to AFDC with a note that says, “for Erika” on the bottom left of the check.

Send donations to the Alliance for Families with Deaf Children, Erika’s Fund, 1350 E. Sunrise Blvd., Suite 105, Fort Lauderdale, FL 33304.

Donations are tax deductible.

Founded in 2001, AFDC is a 501(C)3 non-profit organization that helps families with deaf children overcome barriers to successful communication. The organization also helps deaf and hard-of-hearing children achieve their highest levels of academic, social and personal success.

On average, fewer than 10 percent of hearing parents are able to use sign language to communicate with their deaf child, and only 1 percent of families who come to AFDC can communicate with their children through American Sign Language.

AFDC’s mission is to see deaf and hard of hearing children succeed through providing families with resources, services, and support.

The organization relies entirely on grants and donations to provide these badly needed services to South Florida families.

To donate or for more information, please call AFDC at 954-370-1145 or visit AFDC: Alliance for Families with Deaf Children.

It is another reason why we need universal or socialized health care. :)
 
i disagreed with selling home for badly needed medical treatment?? its not needed BADLY. its not a LIFE- threatneing? *scoffs*

a home is very important than ci .. its a place to live in and sleep in? i agree with others that what if ci doesn't benefit her? then they would do it for nothing..they lost the house for that? come on!

they could have done like a fundraiser and ask for donations and go on tv? jeez. i wouldn't do such thing like that as home is IMPORTANT! sigh!

unbelivable!!!!!
 
i disagreed with selling home for needing ci badly?? its not needed BADLY. its not a LIFE-saving device? *scoffs*

home is important than ci .. its a place to live in? and i agree with others that what if ci doesnt benefit her? then they would do it for nothing.. lose the house for that? come on!

they could have done a fundraiser and ask for donations and go on tv? jeez. i wouldnt do such thing like that as home is IMPORTANT! sigh!

unbelivable!!!!!

Freaky Cat, you are right!
 
Freaky Cat, you are right!

:ty:


i like to add this... if it was cancer or other kind of diseases- I would understand that if their insurance have been denied so they sell their home as it is life-threatening disease and need to get treatments for that. completely understandable yet sad.. but that is different compare to ci. ci is not a badly needed medical treatment? its just a TOOL to help us hear, nothing more! *sigh*
 
:ty:


i like to add this... if it was cancer or other kind of diseases- I would understand that if their insurance have been denied so they sell their home as it is life-threatening disease and need to get treatments for that. completely understandable yet sad.. but that is different compare to ci. ci is not a badly needed medical treatment? its just a TOOL to help us hear, nothing more! *sigh*

Agreed..
 
Wow... I can't believe what I just read that article. That family is screwed! I know that they are WILLING to do anything for their deaf daughter. That is great but selling their house just get her daughter implanted? Come on! They can do better than that! I agree with people above me that is not life threatening situation.

Only advice I would have for that family... Change their insurance period. It is very simple to do that. They don't have to sell their house... Just change the insurance for God's sake!
 
:ty:


i like to add this... if it was cancer or other kind of diseases- I would understand that if their insurance have been denied so they sell their home as it is life-threatening disease and need to get treatments for that. completely understandable yet sad.. but that is different compare to ci. ci is not a badly needed medical treatment? its just a TOOL to help us hear, nothing more! *sigh*

I completely agree with you!
 
Wow... I can't believe what I just read that article. That family is screwed! I know that they are WILLING to do anything for their deaf daughter. That is great but selling their house just get her daughter implanted? Come on! They can do better than that! I agree with people above me that is not life threatening situation.

Only advice I would have for that family... Change their insurance period. It is very simple to do that. They don't have to sell their house... Just change the insurance for God's sake!

That too!!! What concerns me is that they want the CI so badly is that they must have high expectations from it and if their daughter gets it, they will mostly likely put pressure on her to develop listening and oral skills and if she is unable to meet their expectations? That can become a huge burden on the child knowing that they had to sell the house. Maybe they arent like that but just a vibe I got from reading the article. Scary!
 
I agree with Shel and Pacman on this one. I feel sorry for the kid.
 
That too!!! What concerns me is that they want the CI so badly is that they must have high expectations from it and if their daughter gets it, they will mostly likely put pressure on her to develop listening and oral skills and if she is unable to meet their expectations? That can become a huge burden on the child knowing that they had to sell the house. Maybe they arent like that but just a vibe I got from reading the article. Scary!

Exactly! I sometime wonder why are they making huge deal out of it by having to sell the house... They should be aware that there are another options to get cochlear implant like change their insurance or apply for program(s) that will give them the grant to get cochlear implant. I have a feeling that there might have more stories than just cochlear implant behind the article. Who knows?
 
It is another reason why we need universal or socialized health care.
Have to totally disagree.
Under a Universal/Socialized system this would still not be covered or if it were the child would go on a waiting list that could see her getting to the top by adulthood. That is why the countries with this sort of health plan has droves of their citizens going across borders for treatment and tests we take for granted as common place.
Also - Someone (ie. those who work) will be the ones who pay for all the free healthcare.

I agree with Shel and Pacman on this one. I feel sorry for the kid.
Ditto!
The child's needs are not being met. What must this child think of herself and how much pressure must be on her shoulders over this house selling ordeal.
 
Good God where the hell are the priorities of this family?

Oh lets become homeless so our daughter can learn to hear. Ya uhhh OK um whatever.

Scuse me but this is NOT a life-threatening illness we are talking about here - this is deafness. No one has been known to die directly from deafness itself.

Theres a reason why most insurance companies won't cover it - they KNOW there are other options besides CI.

The problem is that when a child is born deaf doctors only present one option CI and thats it when there are many options available and plenty of resources to go along with it.

Why is it that doctors only call in the pro-CI groups, I think what some of need to do is approach doctors and say hey CI is not the only option - there is ASL which is a flourishing language, there are terps, there are places that offer parents a crash course in ASL there are even videos on teaching hearing babies ASL so why not teach a deaf baby ASL?

I think the State Deaf Associations as well as the NAD need to give hospitals pamphlets to hand out to parents whose children are born deaf and say OK you're child is deaf, we are here to help you and your child navigate this strange new world. CI is only ONE option. there are many more options and many people and resources to help you decide which one is right for your child.
 
Good God where the hell are the priorities of this family?

Oh lets become homeless so our daughter can learn to hear. Ya uhhh OK um whatever.

Scuse me but this is NOT a life-threatening illness we are talking about here - this is deafness. No one has been known to die directly from deafness itself.

Theres a reason why most insurance companies won't cover it - they KNOW there are other options besides CI.

The problem is that when a child is born deaf doctors only present one option CI and thats it when there are many options available and plenty of resources to go along with it.

Why is it that doctors only call in the pro-CI groups, I think what some of need to do is approach doctors and say hey CI is not the only option - there is ASL which is a flourishing language, there are terps, there are places that offer parents a crash course in ASL there are even videos on teaching hearing babies ASL so why not teach a deaf baby ASL?

I think the State Deaf Associations as well as the NAD need to give hospitals pamphlets to hand out to parents whose children are born deaf and say OK you're child is deaf, we are here to help you and your child navigate this strange new world. CI is only ONE option. there are many more options and many people and resources to help you decide which one is right for your child.


U know it is interesting...many of the hospitals here in MD do that and tell the parents about our infant program. Many of the parents get their babies implanted and participate in our infant program only to pull their children out by the time they enter kindergarden to go to oral only programs. So the parents know about ASL but feel that their children need to be in a spoken environment only in the educational setting but are not against using ASL outside of the education setting. Then, we see some of the same kids later on in our programs due to struggling in the oral-only programs.

However, the article states that the family is learning ASL but they seem to want it all.
 
Good God where the hell are the priorities of this family?

Oh lets become homeless so our daughter can learn to hear. Ya uhhh OK um whatever.

Scuse me but this is NOT a life-threatening illness we are talking about here - this is deafness. No one has been known to die directly from deafness itself.

Theres a reason why most insurance companies won't cover it - they KNOW there are other options besides CI.

The problem is that when a child is born deaf doctors only present one option CI and thats it when there are many options available and plenty of resources to go along with it.

Why is it that doctors only call in the pro-CI groups, I think what some of need to do is approach doctors and say hey CI is not the only option - there is ASL which is a flourishing language, there are terps, there are places that offer parents a crash course in ASL there are even videos on teaching hearing babies ASL so why not teach a deaf baby ASL?

I think the State Deaf Associations as well as the NAD need to give hospitals pamphlets to hand out to parents whose children are born deaf and say OK you're child is deaf, we are here to help you and your child navigate this strange new world. CI is only ONE option. there are many more options and many people and resources to help you decide which one is right for your child.

I completely agree with you. I believe that most of doctors will say cochlear implant because they will make the profit from that. If they encourage patients to learn ASL and be active in deaf community, they will lose money. Business is business.
 
I completely agree with you. I believe that most of doctors will say cochlear implant because they will make the profit from that. If they encourage patients to learn ASL and be active in deaf community, they will lose money. Business is business.

But funny thing is many deaf people who are active in the deaf community are getting CIs so it seems like ASL/Deaf community has no impact on the sale of CIs. :dunno:
 
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